August is a time of transition. For many, it marks the end of summer and the beginning of a new season of routines—whether that’s heading off to college, starting a new school year, managing changing work demands, or caring for a newly diagnosed loved one. For those living with celiac disease, or supporting someone who is, these transitions come with an added layer of planning, vigilance, and emotional labor.
At Beyond Celiac, we recognize that these life changes—whether big or small—can bring unique challenges. For someone newly diagnosed, it may mean relearning how to navigate everyday life. For a parent, it might involve advocating for a child in a new school environment. For a college student, it could mean figuring out how to eat safely in a new dining hall. Each of these moments, while challenging, is also an opportunity to build confidence and community.
We are here to be helpful. Our team has curated specific resources for many of these challenging moments:
If you’re seeking connection and shared experience, we invite you to explore:
We know the path with celiac disease can be isolating at times, especially during periods of change. But you’re not alone—and you don’t have to navigate it alone. At Beyond Celiac, we remain committed to supporting you today, and driving toward treatments and a cure for tomorrow.
Wishing you strength and support during this season of change,
—Alice
Tired of the heat? Look ahead to cooler days with Step Beyond Celiac!
Save the date and join us this fall:
Can’t join in person? Go virtual from anywhere!
Let’s step up—together for a cure!
Take advantage of abundant, fresh summer vegetables by baking up squash, zucchini, and tomatoes for a delicious side to any main. Top with cheese for richer flavor, and bake it longer for a crisp, crunchy coating.
Mix and match your favorite summer fruits in this sweet salsa. Enjoy on its own, or pair with gluten-free cinnamon chips. Both can be adjusted to your taste—try adding mango hot sauce for heat!
“For me, a cure would be twofold: it would lift a mental weight by making food and socializing feel easier and more relaxed, and it would offer physical reassurance that I’m supporting my body as best I can going forward.
I just want to thank everyone in the celiac disease community who’s doing the work—your efforts are making a real difference, and I’m grateful to be walking alongside you.”
Read Max’s Story
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How often should someone already diagnosed with celiac disease get the celiac disease blood test?
Someone diagnosed with celiac disease should get repeat testing annually. This means they should have their blood levels checked with the IgA-tTG or IgA-EMA tests once a year. This is to ensure their immune system has normalized, and the patient isn’t ingesting gluten. If the patient has a history of nutritional deficiencies or anemia, their doctor may also want to order vitamin or mineral panels. Learn more about follow-up testing.
Struggling with your celiac disease symptoms? We are looking for people with celiac disease to take part in a clinical study. You may be eligible to participate if you:
Living with celiac disease can be challenging. See if you may qualify for our study today.
There are a lot of assumptions about the gluten-free community. Help us distinguish true from false and fact from fiction by filling out our demographics survey. This is open to everyone, including those from outside the US, with gluten sensitivity, gluten ataxia, old, young, caregivers, healthcare practitioners, and, yes, celiac disease patients. Please help researchers understand our community by filling out this survey—no account or login necessary!
This award provides $40,000 for one year to independent investigators at any career stage researching new directions in celiac disease or gluten-related disorders. Applications are due September 18, 2025, and funding begins April 1, 2026.
Big Push On to See ADDE Allergy Menu Bill Succeed in California
The proposed ADDE Act has cleared another hurdle toward becoming law in California. The act would require restaurants to list major food allergens in writing on items on their menus. The bill, known as SB 68, passed in the state Assembly’s Health Committee.
Creating a Safe Gluten-Free Kitchen After Diagnosis
Were you or your child just diagnosed with celiac disease, non-celiac gluten-sensitivity, or another condition that means you have to go gluten-free? Worry not! Transitioning to a gluten-free lifestyle can feel overwhelming, but creating a safe kitchen is one of the most empowering first steps.
Host without the Toast: Gluten-Free Guide to Surviving Gatherings
Birthday parties, holidays with the family, celebratory team dinners after extracurriculars, or a simple gathering with friends: all can be fraught with tension when you’re gluten-free. It’s tough to relax and have fun when you’re constantly worrying about getting sick or being the odd one out. As patients ourselves, Beyond Celiac staff will give you our top tips for not just managing but enjoying parties when you’re gluten-free.
Raise Money for Beyond Celiac on Facebook!
Happy birth-month to all our August-born community members! When your big day rolls around, consider raising money for Beyond Celiac so that we can help fund new research by scientists in the celiac disease field. And a HUGE thank you to everyone who’s created fundraisers for us throughout the years! These fundraisers help make our important work possible.
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