Note from Alice: Our Plan to Cure Celiac Disease by 2030
Yes, you read that right. Beyond Celiac has unveiled our strategic science plan to change the future for the 3.2 million Americans living with celiac disease. We believe a cure is possible and are putting in place the right people and plans to get there in the next decade.
A cure to Beyond Celiac means real treatment options so those with celiac disease can live healthy lives and eat without fear. As a member of our community, you know that many with celiac disease continue to suffer from the daily burdens of living with this serious autoimmune disease. The lasting symptoms and damage from celiac disease along with the delay in diagnosis and the daily burden of the gluten-free diet are some of the many reasons we made the pivot to focusing on research. And now, after years of solving problems, bringing together experts in Symposiums and Summits, disrupting the status quo (in a good way), creating strategic partnerships and building our science team, we firmly believe that an effective treatment or cure is possible by 2030.
Our plan includes a multi-pronged approach to getting us to the finish line. With your help, our first priority will be accelerating effective treatments that will allow those with celiac disease to eliminate the burden of the disease from their lives. Eventually, we will also focus on research that looks at stopping the disease from ever starting. Our goals are lofty and even disruptive but we believe we can achieve them by creating an outstanding science department and staying laser-focused on the following scientific priorities:
- Evidence Generation: Highlighting the seriousness of celiac disease. Through our registry Go Beyond Celiac and other initiatives, we are collecting and analyzing comprehensive data that you have shared with us on the burden of celiac disease and gluten sensitivity. We will learn more about your journey, your symptoms and how we can best help you live life. With this information, we can increase awareness and make a compelling case for larger investments from government agencies, pharmaceutical companies, biotech and more.
- Translational Research: Accelerating scientific progress toward a cure. We are funding promising research that quickly translates from scientific investigation to clinical use, speeding the development of treatments for patients. We advance science on what you want and need.
- Clinical Trials: Enabling faster approval of treatments. As the nation’s top recruiter for celiac disease clinical trials, we will continue educating our community about the importance of participating in trials. We will also work with pharmaceutical companies to ensure trials are designed with patient perspectives in mind. We thank you for your participation.
- Drug Repurposing: Leveraging existing solutions for our community. We will invest significant resources to identify treatments that have been investigated or approved for other purposes but might also benefit celiac disease patients, reducing risk, cost, and time to market for potential celiac disease treatments. This is a proven model used for the development of the COVID-19 vaccine.
We’ve already begun creating strategic partnerships with heavy hitters such as Janssen and National Minority Quality Forum and have exciting new announcements on the horizon as well.
You can read more about our new science plan here. Thank you for your support of Beyond Celiac and we look forward to reaching our goal with you and for you. We are so excited about what the future holds for those with celiac disease and know that together, we can find a cure by 2030.
Together for a cure,