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The Beyond Celiac Newsletter

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A purple image with the words "It's here!" and a loaf of Canyon Bakehouse gluten-free cinnamon raisin bread.

Summer of Science

Rooted in science from the start, twenty years ago, Beyond Celiac educated thousands of medical professionals, increasing celiac diagnosis rates from 3% to nearly 50%. Today, we drive more research activities than ever before, from organizing patient-led meetings with the FDA to address challenges in clinical trials to investing $3 million to date in research aimed at identifying the cause and effects of celiac disease. All of our work ultimately drives progress toward treatments for celiac disease.

Right now, with your help, we are making strides toward a treatment beyond the gluten-free diet with 8 current research projects. During June, we will leap three steps for every dollar raised toward our $15,000 goal, thanks to a dedicated celiac community member’s gift.

Let’s seize this opportunity! Every dollar fuels the vital research that will bring us a cure.

Donate to our work today!

Gluten-Free Recipes

Quinoa and fruit salad. Quinoa and Fruit Salad with Poppy Seed Dressing

With fresh fruits coming into season, now is the time for this salad to shine. This is great as a side dish with any grilled meat or fish, or on its own. You can even prepare the quinoa with dressing the day before, but be sure to only add the fruit a short while before serving.

A black bean burger on a plate next to a bowl of guacamole.Black Bean Burgers

This gluten-free black bean burger is perfect for any vegetarians with celiac, or folks looking to incorporate more vegetables into their diet. Try making it for the next summer barbecue, and customize it with whichever toppings you prefer.

This recipe was provided courtesy of our friends at the Gluten-Free Palate.

An ad for Walker's shortbread cookies. Reads, "Walker's Gluten-Free Shortbread. Scotland at it's finest"

Trivia Question of the Month

QUESTION: What percent of parents with a child under 18 mistakenly believe that it is fine for a child with celiac disease to eat food served at birthday parties, snacks after their sports team game, and other special occasion situations even though it is not
gluten-free because it’s not a daily occurrence.

ANSWER: 32%. 

This data comes from the 2024 Harris Poll on behalf of Beyond Celiac. To learn more, please visit our Harris Poll page, where you can get the full report.

An ad for Against the Grain gluten-free pizza. Reads, "$5 off pizza & bread. Made with real, simple ingredients. Save now."

Research News

When children with celiac disease become adults, follow-up care is often neglected

Children diagnosed with celiac disease often neglect follow-up as they reach adulthood, study shows.

New results from clinical trial shows continued progress for a drug to treat celiac disease

Increased doses of a drug being studied for the treatment of celiac disease tempered the response to gluten in celiac disease patients and remained as safe and well tolerated as lower doses.

Final step in diagnosing celiac disease often doesn’t occur even when blood tests indicate the need

Overall, about 30 percent of people who have had a positive blood test for celiac disease don’t go on to get a confirming endoscopy and biopsy, Beyond Celiac research presented at DDW found.

Read more research news on our Research News Feed

Get Involved in Research

Go Beyond Celiac Gluten Exposure Symptoms & Impact Survey

This survey intends to provide greater clarity on the experiences that people with celiac disease have when exposed to gluten, including the top symptoms with a negative impact and how symptoms and gluten exposure negatively impact quality of life.

If you’re signed up for Go Beyond Celiac, we invite you to log in and complete this survey. If you haven’t already joined, please become a member of Go Beyond Celiac and start sharing your story today.

Learn more about Go Beyond Celiac

An ad for UNiTE gluten-free snack bars. This one is yellow and brown for the churro flavor.

Voices of Celiac: Kendra’s StoryKendra and her gluten detection service dog Suki sit in front of a fence

“I had a senior dog and I knew I wanted another dog, and I started to seriously think a gluten detection service dog may be an option. I couldn’t afford a fully-trained one, but an owner-trained one was an option. COVID gave me the time at home to start the process and I was very fortunate to get a puppy. I worked with a trainer over Zoom who taught me what to do. Suki, my gluten detection dog, now checks all my food, medicine, and personal care products for gluten. She travels with me everywhere, and I am so thankful to have her.”

Read Kendra’s Story

Share Your Story

An ad for Modify Health that reads, "gluten-free meals. Delivered to your door. Modify Health. Select your meal today."

Allergic Living Spotlight

The Craft Brewmasters Who Are Getting Gluten-Free Beer Right

In the past 10 to 15 years, the walk-in coolers at grocery and liquor stores across North America have gradually added a few dozen gluten-free options, ranging from European imports such as Schnitzer Brau and Green’s to niche products like New Grist, and from big beer labels like Anheuser-Busch’s Redbridge to “we-only-make-one-beer” operations such as Bard’s Tale.

Learn more about these revolutionary brewmasters bringing beer to the gluten-free community.  

Ad for Jones Dairy Farm, reads, "all natural sausage from Jones. Now in larger, resealable bags! Available in pork, turkey, and chicken."

News, Events & Updates

Watch: May Town Hall, Managing the Psychosocial Burden of Celiac Disease

Many with celiac disease often report feeling isolated, awkward, and disheartened as they navigate the world on a gluten-free diet. In this Town Hall celebrating both Celiac Awareness Month and Mental Health Awareness Month, Dr. Anava Wren discusses her research on strategies to combat the social and psychological impacts of celiac disease.

Evening Beyond Celiac

Evening Beyond Celiac is our annual gala, taking place each June. This year we will be honoring The Snider Foundation, TODAY’s Dylan Dreyer and Dr. Dan Leffler, for their contributions to the celiac community. We look forward to welcoming all guests to Philadelphia on June 13th, for a wonderful night! 

Raise Money for Beyond Celiac on Facebook!

Happy birth month to all our June-born community members! When your big day rolls around, consider raising money for Beyond Celiac so that we can help fund new research by scientists in the celiac disease field. And a HUGE thank you to everyone who’s created fundraisers for us throughout the years! These fundraisers help make our important work possible.

Read more news on our Celiac in the News feed

Think you may have celiac disease?

Symptoms Checklist