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The Beyond Celiac Newsletter

Monthly Newsletter


 

Thank you to everyone that Raised Your Voice and ran/fundraised for our Virtual Step Beyond Celiac 5K!

We want to give a huge THANK YOU to everyone who raised their voice over Celiac Awareness Month via donating/fundraising for our fundraising campaign or running our virtual Step Beyond Celiac 5K! We raised over $100,000 in May for celiac disease awareness and research… thanks to YOU!

And thank you to our 2021 Virtual Step Beyond Celiac 5K Sponsors:

Snow ball on a plate with raspberries and red flowers surrounding it.

Snow Queen Snow Balls

So very easy, quick to make and freeze, and naturally gluten-free. It’s basically whipped cream and crushed meringues frozen. This is truly a dessert made in heaven with the slight crunch from the meringues, the mild almond liqueur flavor and the punch of flavor from the raspberries.

 

Salmon pate on a bed of salad.

Salmon Rillettes and Smoked Salmon Spread

Try a nutritious, delicious, and easier alternative to a salmon rillette by making Chef Oonagh Williams’s salmon pâté (spread). It has a very mild, subtle taste, and can be paired with crackers, cheese, bread, salad greens, and roasted vegetables.

 

 

Read more research news on our Research News Feed

Clinical Trials

ACeD Study

Do you, or someone you know, have celiac disease? The ACeD study is looking for volunteers with celiac disease to participate in phase 1 clinical trial testing the investigational drug KAN-101.

Requirements:

  • 18-70 years old
  • Biopsy-confirmed celiac disease
  • On gluten-free diet for at least the last 12 months

Get More Information

CeDLara Study

Still experiencing symptoms on a gluten-free diet? The CeDLara Study is currently enrolling qualified patients into their phase 3 study to assess a potential therapy for celiac disease. This study is being conducted to determine if the drug reduces symptoms of celiac disease in patients who are on a gluten-free diet. You may qualify to participate in this study if you:

  • Are 18 years old or older
  • Are biopsy diagnosed with celiac disease
  • Are actively experiencing symptoms related to celiac disease such as abdominal pain, abdominal cramping, bloating or gas
  • Have been on a gluten-free diet for at least 6 months

Learn More

PROACTIVE Study

Are you still experiencing celiac disease symptoms despite your best efforts to follow a gluten-free diet?

The PROACTIVE Celiac Study is looking for people between the ages of 18 and 70, who have biopsy-confirmed celiac disease and have been on a gluten-free diet for at least the last 12 months. You will not be asked to ingest gluten in this study. The goal of this phase 2 clinical trial is to test the safety and effects of the investigational medication PRV-015. In combination with a gluten-free diet, PRV-015 aims to reduce symptoms and intestinal inflammation caused by accidental gluten exposure.

Learn More
See if You Qualify
Use referral code: REFBC

Solutions for Celiac Study

The Solutions for Celiac study is researching a drink-based study medication and its ability to reduce symptoms of accidental gluten exposure. Latiglutenase is a study medication designed to break down gluten into inactive pieces in the stomach to protect people with celiac disease. No uncomfortable biopsies or injections.

Locations: Chattanooga, TN | New York, NY | Chesterfield, MI | Rochester, MN

Learn More



Allergic Living Spotlight

A Gluten-Free Take on Ancient Grains

Curious about what the term “ancient grains” actually means, and whether or not you can eat them? Read more about the history, nutrition, and gluten-free status of these grains.


News, Events & Updates

Think you may have celiac disease?

Symptoms Checklist