Advocacy: Our community has the power to drive change by encouraging our legislators to support initiatives that make it easier for people with celiac disease to safely consume gluten-free foods, beverages, medications and supplements AND to drive funding for celiac disease research.
As part of our advocacy, we signed on to a letter going to Congress asking for continuing and increased (5% plus inflation) support for the critical and highly successful defense health research programs funded through the Congressionally Directed Medical Research Programs (CDMRP) at the Department of Defense (DoD).
While many of these DoD programs are directly related to research concerning preparedness and response to global pandemics, others fund research from a wide range of medical conditions and health challenges. This includes autoimmune diseases.
On Sunday, March 1, members of the Beyond Celiac team spent their morning at Children’s Hospital of Philadelphia’s annual Celiac Education Day.
There, they informed attendees about legislation, shared information on the importance of the gluten-free diet, how to correctly read food labels, tips for eating out, and updates on our research efforts to patients with celiac disease and their caretakers. Visitors were also able to sample a number of gluten-free treats, learn about the gluten-free lifestyle, and meet CHOP healthcare leaders specialized in the treatment of celiac disease.
Watch this page for new initiatives that you can support.
Then, contact your representatives and encourage them to support legislative initiatives.
1. Call, write, email, or send a message to your Senators and Congressional reps. Include a personal story.
2. Set up district meetings as Senators are back home during recesses.
3. Attend local events and talk to their your Senators and their staff at the events urging them to cosponsor.
Download a sample letter for your congressperson written by the staff at Beyond Celiac: