Voices of Celiac Disease
Beyond Celiac is spreading awareness and understanding by highlighting diverse stories of people with celiac disease and non-celiac gluten sensitivity
Beyond Celiac is spreading awareness and understanding by highlighting diverse stories of people with celiac disease and non-celiac gluten sensitivity
“I do think it’s taboo for men [to eat gluten-free]. It’s toxic masculinity. But I think that it’s super important to say, ‘Here’s how I handle it. Try it yourself.'”
“The doctor was saying, ‘She’s a kid, she’ll grow out of it. Tummy aches are normal.’ I pushed back and said, ‘That’s not enough.’”
“You’re always in your mind, even when you’re out with family, saying to yourself, ‘Well, I can’t eat what they’re eating.’“
“I thought I had cancer. I thought I was dying. I felt that sick and lost that much weight so quickly.“
“Not only did I have to think about my current day-to-day life, but also how I was going to be able to live gluten-free abroad.”
“Sometimes people don’t understand the emotional toll of having a child with an autoimmune disorder and all that goes into keeping her safe.”
“I remember before I was diagnosed, seeing in the grocery store yogurt or something labeled as gluten-free, and thinking, ‘Oh my gosh, that’s so ridiculous. Obviously, apples don’t have gluten in them.’ Now those stickers are my saving grace!“
“At one point celiac disease was discussed but dismissed because of my ethnicity.”
“We didn’t know what was wrong with our daughter. Our doctor initially did not think celiac disease because she was so young and because she didn’t have diarrhea.”
“That’s the crazy part, I never had symptoms. At least not any of the ones everyone talks about.”
“When the number came out, he was sure I had celiac disease and that was the answer to all my life’s questions.”
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