The 2022 Beyond Celiac Research Summit brought together stakeholders crucial to accomplishing the goal of developing new celiac disease treatments.
On April 6, 2022 Beyond Celiac held its 3rd research summit. The event, The Evolving Landscape of Celiac Disease, brought together:
Celiac disease clinician-scientists
Entrepreneurial drug developers
Leaders in health equity
Watch Summit Recordings
Alice Bast, CEO and Salvo Alesci, Chief Science and Strategy Officer
Welcome to the Beyond Celiac 2022 Research Summit: The Evolving Landscape of Celiac Disease
Marisa Stahl, MD: Mass Screening Outcomes for Pediatric Celiac Disease
Paul Klenerman, MD, PhD and Michael Fitzpatrick, MA (Cantab), MBBS, DPhil: What Viruses Can Tell Us about Celiac Disease
Jocelyn Silvester, MD, PhD: Development of Quantitative Molecular Measures of Celiac Disease Activity
Iain Croall, PhD: Your Brain on Gluten, How Gluten-Related Conditions Affect the Brain
Alessio Fasano, MD: Challenges and Opportunities of Celiac Clinical Trials in Pediatrics
Shayna Coburn, PhD: Pediatric Clinical Trials in Celiac: The Importance of Measuring Quality of Life
Panel Discussion: Perspectives of Pediatric Clinical Trials for Celiac Disease
Panel Discussion: Expanding Diversity in Celiac Disease
We hosted this Research Summit because so many needs remain unmet for the celiac disease community. Patients remain undiagnosed for years, suffering needlessly, and then if they are lucky enough to be diagnosed, they are put on a strict, lifelong, and burdensome diet that often rules their lives. They choose colleges, careers, and decline opportunities because they have no options. From the moment we wake up, we are on call and constantly evaluating what we put into our mouths. There are no breaks. There are no days off. If we or others around us make a mistake, we can lose days to debilitating symptoms that make it nearly impossible to get through our day-to-day tasks. On top of this, we now know that many of us are not healing on this gluten-free diet.
Beyond Celiac has worked diligently through the last decade to amplify the patient voice and advocate for treatments beyond the gluten-free diet. Our science team and Scientific Advisory Board have created and are implementing the only transformational patient-centered research plan in the celiac disease space. We are focused on accelerating solutions so that we can live our lives to the fullest, free from worry about every bite.
Our work includes forging important biotech and pharmaceutical partnerships, recruiting for clinical trials, and funding innovative research through our grant program, which has granted close to $800,000 and counting over the last few years. But innovation takes cooperation. There’s a reason we changed our tagline to “together for a cure.” The 2022 Beyond Celiac Research Summit is a critical next step in working together to deliver treatment options to everyone who wants and needs them.