Beyond Celiac Projects
We value the strong connection and relationship with our community. Beyond Celiac knows that our robust social media network and online community provides the unique opportunity for us to learn more about your behaviors, attitudes, opinions and medical history. It is this very information that doctors and researchers need to know in order to advance the field of celiac disease.
By connecting with the community through social media and surveys, we have learned the issues that have the largest impact in your day to day lives. We have ventured into many research projects designed to better understand the issues you face so that, together, we can work to address them in the best way possible.
Below is a sample of the work that Beyond Celiac has done to make sure that your voices are heard within the research world.
Patients worry about gluten in medications
A study funded by a Beyond Celiac grant shows how much celiac disease patients and those who have gluten sensitivity worry about gluten in drugs.
“Celiac Disease Management: A Comparison Between a Celiac Center and the Community Setting”
Beyond Celiac examines the difference working with an experienced celiac disease specialist makes in the lives of people living with the condition.
“Celiac Disease Online Course: Impact and Barriers to Diagnosis”
Beyond Celiac offered a continuing medical education program for medical professionals, designed to educate them on all aspects of celiac disease. Following the program, Beyond Celiac evaluated the results and the program’s impact on the celiac disease community.
“Neurocognitive Effects of Gluten Exposure: Results of a Nationwide Survey”
Beyond Celiac researched the phenomenon known as “brain fog” by the celiac disease community to better understand how if affects people with the serious genetic autoimmune disease.
“The Use of Disease Symptoms Checklist in Self-Initiated Diagnoses of Celiac Disease and Non-Celiac Gluten Sensitivity”
Beyond Celiac research discovers more people are likely to seek a celiac disease test rather than it being first suggested by their doctor.