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“Neurocognitive Effects of Gluten Exposure: Results of a Nationwide Survey”

“Neurocognitive Effects of Gluten Exposure: Results of a Nationwide Survey”

In 2010, Beyond Celiac noticed that its community was regularly talking about “brain fog” as a symptom of gluten exposure, yet doctors and researchers knew little about it. To learn more and help provide researchers with more information, Beyond Celiac teamed up with the Celiac Center at Beth Israel Deaconess Medical Center (BIDMC) and designed and distributed an online survey in early 2011 among patients with celiac disease and non-celiac gluten sensitivity (‘gluten sensitivity’).

An analysis of the survey data helped to shed some light on this commonly reported adverse reaction, including:

  • The number of Beyond Celiac community members who experience “brain fog”
  • The specific types of neurocognitive symptoms associated with “brain fog”
  • How often “brain fog” lasts

An abstract of this work was accepted as a poster presentation to the 15th International Celiac Disease Symposium in 2013. Learn more about this study by downloading the poster presentation here.

Study collaborators include Kristin Voorhees, MA, Director of Healthcare Initiatives at Beyond Celiac; Kristen Sweet, PhD, former Beyond Celiac Intern with her doctorate in Genetics and Molecular Biology; Jessica B. Edwards George, PhD, NCSP, Assistant Clinical Professor at Northeastern University; and Dan Leffler, MD, MS, Director of Research at the Celiac Center at BIDMC and Beyond Celiac Scientific/Medical Advisory Council member.

Note: At the time this research was conducted, Beyond Celiac was known as the National Foundation for Celiac Awareness. Learn more about the name change here

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