BEYOND CELIAC IS ACCELERATING RESEARCH
so we can forge the pathways to a cure.

The world of celiac disease research changes and evolves each and every day. Beyond Celiac keeps the community up-to-date on research in many ways, including our Research News Feed and the Research Opt-In. Sign Up to Receive Research News

Recent Research News & Articles:

• Risk for celiac disease overlooked in those with no symptoms (09/19/2019)
  A new study found more than 40 percent of first-degree family members had celiac disease, even though most had no symptoms or symptoms that are not typical.
• Extra half slice of bread a day may increase chance of celiac disease in at-risk children (09/6/2019)
  A international study has found that the more gluten children at risk for celiac disease eat before 5 the greater chance they will develop celiac disease or celiac disease autoimmunity.
• Brain fog study presented at international celiac disease symposium (09/5/2019)
  Alice Bast, Beyond Celiac CEO, and Jessica Edward George, of Northeastern University, presented research at the International Celiac Disease Symposium that outlines the affects of brain fog on day-to-day life
• RNA sequencing plays role in new research funded by Beyond Celiac (08/23/2019)
  Beyond Celiac is funding cutting-edge research into cells that are disease fighting soldiers and improvements in interrpreting biopsies used for diagnosis
• Drug to treat celiac disease gets to furthest-ever stage of study (08/13/2019)
  A trio of firsts happened when a patient in a clinical study was given a dose of a drug to treat celiac disease.

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Celiac Disease in the News:

• Beyond Celiac Awards Nearly $450,000 in Research Grants (08/15/2019)
  Beyond Celiac awards grants to scientists conducting groundbreaking celiac disease studies
• Scientists Find Way to Detect Rye Gluten in Foods (08/15/2019)
  Scientists from CSIRO, Australia’s national science agency, announced that they’ve found a way to detect the presence of rye gluten in foods
• Beyond Celiac Launches New App (08/7/2019)
  Beyond Celiac launches first-of-its kind app for patient engagement in celiac disease research
• Nexvax2 Setback Only One Aspect of Ongoing Scientific Discovery (07/1/2019)
  Strengthening our commitment to advancing celiac disease research
• The Celiac Disease Paradox (05/10/2019)
  The celiac disease community is caught between being empowered to take control of our well-being while struggling to do so because our only treatment – the gluten-free diet – is burdensome and unreliable

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People living with celiac disease are the key to making progress in research. Beyond Celiac works to connect patients with researchers so they can work to address your most pressing needs.

Go Beyond Celiac

Go Beyond Celiac is an online community created by people with celiac disease, for people with celiac disease. Join today to help advance celiac disease research by sharing your stories and experience:  

Marie Robert, M.D., Chief Scientific Officer

Dr. Robert is a nationally recognized gastrointestinal (GI) liver and pancreatic surgical pathologist with 25 years of experience in clinical diagnosis, teaching and collaborative scientific endeavors across a wide spectrum of diseases, including inflammatory and neoplastic conditions of the GI tract. Dr. Robert will lead the development and implementation of a transformational patient-centered research agenda focused on accelerating solutions toward new pharmaceutical treatments and a cure for celiac disease. She will develop and establish research and funding priorities and will translate the Beyond Celiac Research Consortium findings to impact patients in areas including clinical decision-making about diagnosis, disease management, treatment, and eventually a cure.

Kate Avery, MPH, Director of Research and Patient Engagement

Kate supports and engages patients and caregivers who share their experiences and stories with us in pursuit of increased diagnosis and improved disease management and treatment. She has worked on multiple qualitative and quantitative research projects focused on understanding the diagnostic and disease management experience and has long been interested in health communications and the patient journey.

Amy Ratner, Medical and Science News Analyst

With over two decades of experience in journalism, much of it centered around gluten-free living, Amy Ratner joined the Beyond Celiac team in 2016 to bring the latest celiac disease updates to the masses. She regularly reports on and curates the latest in celiac disease research and shares it in patient- and community-friendly language.

The Beyond Celiac Scientific and Medical Advisory Panels

Beyond Celiac has worked with experts in the field of celiac disease through its Medical Advisory Council since its founding. Established in 2003, the Beyond Celiac Medical Advisory Council has played an integral role in establishing and maintaining evidence-based standards for the organization and represents the very best in scientific and medical practice. In 2019, Beyond Celiac expanded its scope of expertise by creating its Scientific Advisory Council as one of the first steps in meeting the goal of finding new treatments and a cure for celiac disease. This new scientific advisory council includes celiac disease, immunology and drug development experts.