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About "Go Beyond Celiac"

About “Go Beyond Celiac”

Go Beyond Celiac is a registry created by people with celiac disease, for people with celiac disease. Join today to help advance celiac disease research by sharing your stories and experiences.

We created Go Beyond Celiac to advance celiac disease research like never before.

As a patient advocacy organization, we’re dedicated to fighting for people with celiac disease and their families.

We envision a world where the 4 in 5 people who are undiagnosed can restore their lives through a timely and accurate diagnosis.

We aim to positively impact almost every aspect of celiac disease research by eliminating a major barrier to progress: the lack of reliable, in-depth patient information. Our aggressive research agenda advances pathways toward a cure for celiac disease, which many experts believe is possible within just 10 years.

Join us by registering for Go Beyond Celiac today – a first step in the fight against celiac disease.

Why Join?

With the power of your voice, Beyond Celiac is shaping a new model for engaging patients in research. Informed and engaged patients are the gears that will ensure celiac disease research results in the changes we deserve.

Across the healthcare field, patients’ stories are shaping what researchers study and how they study it. Go Beyond Celiac connects patients and caregivers with researchers to make sure your needs are heard.

What happens to patients in the real world must be understood. The complete patient experience, not only what is shared in a brief clinic visit, should be part of the research process from the start. Only you can provide a view of what it’s really like to live with celiac disease and what is needed to make your life easier and better.

By participating, you have an opportunity to:

  • Improve your own disease management
  • Share your experiences and learn from the experiences of others
  • Directly contribute to research
  • Keep up-to-date about important developments in diagnosis, disease management, drug development and more

Join Go Beyond Celiac

Additional Materials

View our Monster video for encouraging sign-ups.

If you have celiac disease, you know it’s a monster. Its legions are some of the most common foods in the modern diet. Its secret weapon is gluten, a protein in wheat, barley and rye. The effects can be devastating: Anemia, anxiety, infertility, poor nutrient absorption, osteoporosis, increased risk of diabetes and cancer. It’s time we mount a counter attack. The strategy is simple. We will learn the secrets of celiac disease and use the information to defeat it. You have a story to tell that could hold the clues to a cure! Your story, along with the stories of thousands like you of what it’s like to live with celiac disease will help us tame it, treat it, and eventually cure it. Join us at Sign up and complete the surveys. Every story will bring us closer to a cure.

View our Key to Accelerating Research video.

People with celiac disease have always been at the center of healthcare, medicine and science, playing a role in studies that have provided critical understanding of celiac disease. To keep moving forward, researchers need information directly from you, whether you’re already diagnosed or are at-risk for celiac disease because of family history. Your story can help researchers learn more about why and how celiac disease develops and better understand how the disease affects your emotional, mental and social health. Your voice can lead to increased diagnosis, new treatments and a cure. Beyond Celiac is uniting patients and scientists to create a better life for those who have celiac disease. But we need you. If you’d like to join us in this research mission, you’re in the right place.

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