Beyond Celiac is pleased to present our Virtual Town Hall Series. Throughout the year we will be hosting in-depth conversations with top experts in the field of celiac disease—including clinicians, scientists and advocates—as we aim to answer big questions about this serious autoimmune disease. Join us for each Town Hall where we cover a unique topic brought to our attention by members of our community.
If you have any questions, please reach out to Maria Luci at [email protected].
A presentation by Mark M. Davis, PhD, Director of the Stanford Institute for Immunity, Transplantation and Infection. Beyond Celiac and Dr. Davis discuss potential mechanisms behind fatigue in autoimmune disease followed by a Q&A.
Beyond Celiac team members discussed the biggest celiac disease news from 2022 and what we believe the future holds. Additionally, we kicked off a celebration of 20 years of providing life-changing services to the celiac disease and non-celiac gluten sensitivity community.
This event covered The Society for the Study of Celiac Disease (SSCD), with leaders Dr. Lebwohl and Dr. Verma. The SSCD is a professional organization of physicians, nurses, dietitians, and allied health professionals in the United States, Canada, and Mexico who specialize in the treatment of celiac disease and other gluten-related disorders. Additionally, Dr. Lebwohl discussed the role of genetic testing for celiac disease and the potential future of genetic risk stratification based on recent research. Dr. Verma covered the ongoing debate over skipping the biopsy for the diagnosis of celiac disease, followed by a Q&A.
Dr. Lebwohl is an assistant professor of medicine and epidemiology and a practicing gastroenterologist at Columbia where he received his medical degree and was a fellow in digestive and liver disease, during which time he obtained a master’s in patient-oriented research. He is also the director of clinical research at the Celiac Disease Center at Columbia University. Dr. Lebwohl has published numerous studies related to celiac disease and currently serves as president of the SSCD. He is also a member of the Beyond Celiac Scientific Advisory Board.
Dr. Verma is a highly respected pediatric gastroenterologist and medical director at the University of Chicago Celiac Center. Dr. Verma is a leading expert in celiac disease. She is passionate about creating a holistic approach to research that merges adult and pediatric research in celiac disease, inflammatory bowel disease (IBD), and food allergies with clinical research. Dr. Verma also serves on the Beyond Celiac board of directors and is the upcoming president of the SSCD.
This Q&A session featured Amelie Therrien, MD, gastroenterologist at Beth Israel Deaconess Medical Center. Discussions centered around potential non-dietary therapeutic strategies for celiac disease. Potential treatment strategies currently in clinical trials will be covered along with the role of the gluten challenge and clinical trial designs.Dr. Amelie Therrien is an adult gastroenterologist at the Celiac Center at Beth Israel Deaconess Medical Center and an instructor of Medicine at Harvard Medical School. She devotes 50% of her time to research and recently received a Junior Faculty development award from the American College of Gastroenterology to develop a research program in celiac disease. Her work includes mast cells and celiac disease, celiac disease in the postpartum, and clinical trials such as the Solutions for Celiac study on latiglutenase. Solutions for Celiac sponsored this event.
This Q&A session features renowned celiac disease expert Dr. Guandalini, professor emeritus at the University of Chicago and the founder of the University of Chicago Celiac Disease Center. Dr. Guandalini’s clinical and research efforts have greatly influenced the way celiac disease is diagnosed and treated today. His work contributed to the revision of 20-year-old guidelines for diagnosing celiac disease.
Dr. Guandalini has been ranked among America’s “Best Doctors” since 2008. In 2012, he received the prestigious title of “Master of Pediatrics” from the Italian Society of Pediatrics. In 2016, he published Textbook of Pediatric Gastroenterology, Hepatology and Nutrition.
Dr. Guandalini is also the medical advisor for Beyond Celiac partner, and sponsor of this Town Hall, imaware™.
In this Q&A, Dr. Guandalini focuses on answering questions about conditions and co-morbidities that are commonly seen alongside celiac disease.
Dan Leffler, MD, MS, AGAF, and Doug Jacobstein, MD discuss the importance of patient participation in accelerating celiac disease research along with some of the exciting studies currently moving ahead because of patient involvement.
Q&A session with renowned celiac disease expert Dr. Guandalini, professor emeritus at the University of Chicago and the founder of the University of Chicago Celiac Disease Center. Dr. Guandalini’s clinical and research efforts have greatly influenced the way celiac disease is diagnosed and treated today. His work contributed to the revision of 20-year-old guidelines for diagnosing celiac disease.
Dr. Guandalini has been ranked among America’s “Best Doctors” since 2008. In 2012, he received the prestigious title of “Master of Pediatrics” from the Italian Society of Pediatrics. In 2016, he published Textbook of Pediatric Gastroenterology, Hepatology and Nutrition.
Dr. Guandalini is also the medical advisor for Beyond Celiac partner, and sponsor of this Town Hall, imaware™.
Amy Ratner and Kate Avery, MPH, discussed the most exciting celiac disease research published in the past year. They also shared peeks at what is coming down the pipeline and the incredible science Beyond Celiac is funding and accelerating toward treatments and a cure.
Beckee Moreland, restaurateur, gluten-free foodservice consultant, former director of the Beyond Celiac GREAT Kitchens program and certified in culinary nutrition, and Julie Kennedy, RD and long-time Beyond Celiac volunteer, discussed food for the gluten-free community, ways to maximize enjoyment on the diet without sacrificing nutrition and more.
Beyond Celiac Director of Scientific Affairs, Amy Ratner discussed major advances in the celiac disease world with Erica Dermer of Celiac and the Beast. Learn how the world has drastically changed for those with celiac disease since Amy’s daughter was diagnosed in the 90s and Erica was diagnosed in the early aughts—and what the future might hold for those in the community.
A Conversation with National Minority Quality Forum (NMQF), Uncovering Diversity and Addressing Disparity in Celiac Disease, featuring Mary Stober Murray, MPH, NMQF Vice President of Collaborative Action Networks and Salvatore Alesci, MD, PhD, Beyond Celiac Chief Scientist and Strategy Officer. This Town Hall was sponsored by Kanyos Bio, Inc. (a wholly-owned subsidiary of Anokion SA).
A Conversation with CHOP Celiac Center — A Holistic Approach to Pediatric Celiac Disease Management with Lisa Fahey, MD, Betsy Turner, PhD, and Amy Ratner of Beyond Celiac. The CHOP Center for Celiac Disease provides specialized care and support for children with celiac disease, wheat allergies, non-celiac gluten sensitivities, and their families. This Town Hall covers topics ranging from managing celiac disease in children, transitioning to adult care, introducing gluten to babies at risk, helping children cope and so much more!
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