Our guest Dr. Jason Tye-Din talked about various controversial topics in celiac disease, namely whether oats can be a safe part of the gluten-free diet, a potential blood test that doesn’t require the gluten challenge, and monitoring adherence to the gluten-free diet with GIP tests.
In winter of 2023, Beyond Celiac welcomed Debra Silberg, MD, PhD, FACG as our new Chief Scientific Officer and Jordan Dubow, MD, as our new Chief Medical Officer. In this Town Hall, they discuss their backgrounds and what’s in store for Beyond Celiac research in 2024, as well as answered general questions about celiac disease.
This event was possible thanks to our sponsor, Takeda, and the ILLUMINATE trial. Learn more at the Illuminate Study website.
Dr. Arnold Han, MD PhD, of Columbia University, was awarded the 2022 Beyond Celiac and SSCD Early Career Investigator Grant to investigate the role of CD8 T-cells in celiac disease. Thus far, Dr. Han’s innovative research has found more precise ways that gluten sets off damage to the intestine in those who have celiac disease, which he believes could help in the development of innovative approaches to finding a treatment. In our discussion, Han reveals what he’s discovered so far through this research and where he hopes it leads in the future.
Special thanks to our friends at Crunchmaster Crackers for sponsoring this event!
Juanita Belton, PA-C, MPH, is a physician assistant in gastroenterology at Boston Medical Center with a subspecialty in Inflammatory bowel disease and an instructor at Boston University Medical Center’s Dempsey Center for Digestive Disease. She is also the Director of Patient Empowerment at COCCI and a member of the Beyond Celiac DEI Advisory Board.
How do we decide if mass screening for celiac disease is a good thing? Marisa Stahl, MD, is an assistant professor of pediatrics at the University of Colorado School of Medicine where she works with the Colorado Center for Celiac Disease. In 2019, she received the Beyond Celiac/SSCD Young Investigator grant to evaluate the impact of celiac disease on the health and quality of life of children who are identified through a mass screening program. She is currently working on the Autoimmunity for Kids (ASK) study, a free health screening program open to all Colorado children, from one to 17-years-old, designed to detect celiac disease and type 1 diabetes.
A presentation by Mark M. Davis, PhD, Director of the Stanford Institute for Immunity, Transplantation and Infection. Beyond Celiac and Dr. Davis discuss potential mechanisms behind fatigue in autoimmune disease followed by a Q&A.
Beyond Celiac team members discussed the biggest celiac disease news from 2022 and what we believe the future holds. Additionally, we kicked off a celebration of 20 years of providing life-changing services to the celiac disease and non-celiac gluten sensitivity community.
This event covered The Society for the Study of Celiac Disease (SSCD), with leaders Dr. Lebwohl and Dr. Verma. The SSCD is a professional organization of physicians, nurses, dietitians, and allied health professionals in the United States, Canada, and Mexico who specialize in the treatment of celiac disease and other gluten-related disorders. Additionally, Dr. Lebwohl discussed the role of genetic testing for celiac disease and the potential future of genetic risk stratification based on recent research. Dr. Verma covered the ongoing debate over skipping the biopsy for the diagnosis of celiac disease, followed by a Q&A.
Dr. Lebwohl is an assistant professor of medicine and epidemiology and a practicing gastroenterologist at Columbia where he received his medical degree and was a fellow in digestive and liver disease, during which time he obtained a master’s in patient-oriented research. He is also the director of clinical research at the Celiac Disease Center at Columbia University. Dr. Lebwohl has published numerous studies related to celiac disease and currently serves as president of the SSCD. He is also a member of the Beyond Celiac Scientific Advisory Board.
Dr. Verma is a highly respected pediatric gastroenterologist and medical director at the University of Chicago Celiac Center. Dr. Verma is a leading expert in celiac disease. She is passionate about creating a holistic approach to research that merges adult and pediatric research in celiac disease, inflammatory bowel disease (IBD), and food allergies with clinical research. Dr. Verma also serves on the Beyond Celiac board of directors and is the upcoming president of the SSCD.
This Q&A session featured Amelie Therrien, MD, gastroenterologist at Beth Israel Deaconess Medical Center. Discussions centered around potential non-dietary therapeutic strategies for celiac disease. Potential treatment strategies currently in clinical trials will be covered along with the role of the gluten challenge and clinical trial designs.Dr. Amelie Therrien is an adult gastroenterologist at the Celiac Center at Beth Israel Deaconess Medical Center and an instructor of Medicine at Harvard Medical School. She devotes 50% of her time to research and recently received a Junior Faculty development award from the American College of Gastroenterology to develop a research program in celiac disease. Her work includes mast cells and celiac disease, celiac disease in the postpartum, and clinical trials such as the Solutions for Celiac study on latiglutenase. Solutions for Celiac sponsored this event.
This Q&A session features renowned celiac disease expert Dr. Guandalini, professor emeritus at the University of Chicago and the founder of the University of Chicago Celiac Disease Center. Dr. Guandalini’s clinical and research efforts have greatly influenced the way celiac disease is diagnosed and treated today. His work contributed to the revision of 20-year-old guidelines for diagnosing celiac disease.
Dr. Guandalini has been ranked among America’s “Best Doctors” since 2008. In 2012, he received the prestigious title of “Master of Pediatrics” from the Italian Society of Pediatrics. In 2016, he published Textbook of Pediatric Gastroenterology, Hepatology and Nutrition.
Dr. Guandalini is also the medical advisor for Beyond Celiac partner, and sponsor of this Town Hall, imaware™.
In this Q&A, Dr. Guandalini focuses on answering questions about conditions and co-morbidities that are commonly seen alongside celiac disease.
Dan Leffler, MD, MS, AGAF, and Doug Jacobstein, MD discuss the importance of patient participation in accelerating celiac disease research along with some of the exciting studies currently moving ahead because of patient involvement.
Q&A session with renowned celiac disease expert Dr. Guandalini, professor emeritus at the University of Chicago and the founder of the University of Chicago Celiac Disease Center. Dr. Guandalini’s clinical and research efforts have greatly influenced the way celiac disease is diagnosed and treated today. His work contributed to the revision of 20-year-old guidelines for diagnosing celiac disease.
Dr. Guandalini has been ranked among America’s “Best Doctors” since 2008. In 2012, he received the prestigious title of “Master of Pediatrics” from the Italian Society of Pediatrics. In 2016, he published Textbook of Pediatric Gastroenterology, Hepatology and Nutrition.
Dr. Guandalini is also the medical advisor for Beyond Celiac partner, and sponsor of this Town Hall, imaware™.
Amy Ratner and Kate Avery, MPH, discussed the most exciting celiac disease research published in the past year. They also shared peeks at what is coming down the pipeline and the incredible science Beyond Celiac is funding and accelerating toward treatments and a cure.
Beckee Moreland, restaurateur, gluten-free foodservice consultant, former director of the Beyond Celiac GREAT Kitchens program and certified in culinary nutrition, and Julie Kennedy, RD and long-time Beyond Celiac volunteer, discussed food for the gluten-free community, ways to maximize enjoyment on the diet without sacrificing nutrition and more.
Beyond Celiac Director of Scientific Affairs, Amy Ratner discussed major advances in the celiac disease world with Erica Dermer of Celiac and the Beast. Learn how the world has drastically changed for those with celiac disease since Amy’s daughter was diagnosed in the 90s and Erica was diagnosed in the early aughts—and what the future might hold for those in the community.
A Conversation with National Minority Quality Forum (NMQF), Uncovering Diversity and Addressing Disparity in Celiac Disease, featuring Mary Stober Murray, MPH, NMQF Vice President of Collaborative Action Networks and Salvatore Alesci, MD, PhD, Beyond Celiac Chief Scientist and Strategy Officer. This Town Hall was sponsored by Kanyos Bio, Inc. (a wholly-owned subsidiary of Anokion SA).
A Conversation with CHOP Celiac Center — A Holistic Approach to Pediatric Celiac Disease Management with Lisa Fahey, MD, Betsy Turner, PhD, and Amy Ratner of Beyond Celiac. The CHOP Center for Celiac Disease provides specialized care and support for children with celiac disease, wheat allergies, non-celiac gluten sensitivities, and their families. This Town Hall covers topics ranging from managing celiac disease in children, transitioning to adult care, introducing gluten to babies at risk, helping children cope and so much more!
Opt-in to stay up-to-date on the latest news.
Yes, I want to advance research No, I'd prefer not to