SawanThe Voices of Celiac Disease

“My life was totally different before celiac disease. I had many symptoms…”

A photo of Sawan.

Describe your life prior to diagnosis.

My life was totally different before celiac disease. I had many symptoms, like bone weakness, skin darkness, mouth ulcers, hair loss, lack of interest, lack of concentration, weight loss, etc.

How did you find out that you had celiac disease? Did you suspect it beforehand?

My mom saw the condition of my health and she suggested I go to the doctor. The doctor gave me an endoscopy and then said that I have celiac disease.

How long did it take for you to get diagnosed since your first symptoms and what (if any) challenges did you face along the way?

I think five years.

Do you believe anything could have sped up your diagnosis? If so, please explain:

No.

Describe your experience living with celiac disease:

My TtG IgA (blood test) results are normal, but I still face symptoms like brain fog, anxiety, lack of interest, fatigue, migraine etc.