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Letter from Alice: Children and a Cure are Our Future—But We Also Need Help Now
If you’re a parent or a caregiver, you understand that your kids will never be old enough for you to stop worrying about them. Your concerns for their health, happiness, and wellbeing can’t be outgrown. I’m both a mom and now a grandmother of two, and while I’m the only one diagnosed with celiac disease, I worry about whether my eldest daughter and grandchildren will one day get diagnosed with this serious disease. This is part of why the entire Beyond Celiac team, including myself, work tirelessly to accelerate research toward treatments and a cure.
Because if there is a cure for celiac disease, there is one less worry for all the caregivers out there. Imagine a world where celiac disease is curable – one less worry for a new mom, one less concern for a father when their child goes on a field trip, one less burden for a grandparent as their grandchild heads to college, and one less stressor for parents on a budget trying to afford gluten-free food for their children.
However, we also acknowledge the importance of providing help to those suffering from celiac disease today.
Recently, Dylan Dreyer of the 3rd Hour of TODAY shared her son Calvin’s celiac disease diagnosis, which turned their world upside down. Realizing the challenges that many face in transitioning to a gluten-free diet without their means and support, Dylan has joined forces with Beyond Celiac to help spread awareness and understanding.
We are thrilled that Dylan is now actively involved in Beyond Celiac initiatives aimed at facilitating future research while providing support, community, and fun in the present. She was a keynote speaker at our inaugural Community Summit, a day of education, community building, and eating without fear. Next, she will be emceeing our Step Beyond Celiac 5K in Boston, another family-friendly event that offers resources, raises funds, and provides delicious gluten-free treats for all ages. We are so grateful for Dylan’s involvement, especially leveraging her large following to help our community!
At Beyond Celiac, we’re dedicated to making life easier for those affected by celiac disease, especially parents and newly diagnosed individuals. Part of our mission is to provide comprehensive support, resources, and hope for a gluten-free future. That’s why we offer an informative website packed with free resources designed to assist parents and those who have recently received a celiac disease diagnosis. We provide free toolkits, guides, recipes, and articles to help navigate this challenging journey.
But you don’t have to be a celebrity or someone with a giant following to get involved and make a difference. We invite anyone with a gluten-related disorder to join our vibrant social media community, where we share the latest news, research updates, clinical trials, and valuable resources related to celiac disease. Join us in connecting with others who understand your experiences and challenges. Share our posts and help spread awareness within your personal sphere of influence.
Further, consider joining our Ambassador program, which puts boots on the ground to provide local support and build a strong, interconnected community. Our Ambassadors are passionate about helping individuals and families affected by celiac disease.
At Beyond Celiac, we’re committed to making life better today while working tirelessly to create a future free from the worries of celiac disease. Join us on this journey toward a world where celiac disease is no longer a concern, and families can thrive without restrictions. Together, we can make a difference and one day take a big worry away from future parents and children alike.
Together for a cure,
Alice Bast
CEO
