“For me, even a crumb can cause me to go to the ER causing invitations to go to a friend’s house, a restaurant, or a party to bring anxiety.”

“Providers in small, rural places are missing knowledge about how celiac disease can present without gastric symptoms.”

“We didn’t know what was wrong with our daughter. Our doctor initially did not think celiac disease because she was so young and because she didn’t have diarrhea.”

“Since being diagnosed Isaiah has grown almost 12″ and gained over 30 pounds. Celiac disease was stunting his growth.”

“The heart doctors had access to my records, but never once did they bring up that anemia can cause chest pain. I spent over $30,000 out of pocket on multiple tests, one even said it was all in my head.”

“I had migraines, seizures, anemia, stomach pain, anxiety and brain fog.”

“That’s the crazy part, I never had symptoms. At least not any of the ones everyone talks about.”

“I thought my son was dying. He was so weak he couldn’t climb the stairs. His joints were so swollen and he hurt. He slept all the time.”

“My celiac disease was triggered when I was pregnant. During my first trimester my iron levels were normal, but by my second trimester they became so low that I was anemic. No amount of supplements or iron-rich foods seemed to increase my iron levels. It got to the point during my third trimester that I had to routinely go to the hospital for several hours at a time for IV iron infusions.”

“When the number came out, he was sure I had celiac disease and that was the answer to all my life’s questions.”

“I had pimples, brittle nails, enamel bleeding, loss of hair, experienced brain fog and fatigue, had difficulty in controlling my emotions.”

“I always left [the hospital and doctors’ offices] with no answers and was told by many doctors (many times) that my symptoms were all in my head and that it was just anxiety. In fact, I was actually put on anxiety medication for it.”