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Amplifying Your Voice
People living with celiac disease are the key to making progress in research. Beyond Celiac works to connect patients with researchers so they can work to address your most pressing needs.

Go Beyond Celiac

Go Beyond Celiac is an online community created by people with celiac disease, for people with celiac disease. Join today to help advance celiac disease research by sharing your stories and experience:  
The Celiac Disease Research Symposium

View the 3rd Research Symposium

The 3rd Annual Beyond Celiac Research Symposium was held on May 30, 2019 at the University of Pennsylvania. The event was free and open to the public and followed by a complimentary gluten-free reception. It was also live-streamed around the world for those that couldn’t make it in person. View the 3RD Research Symposium

View the 2nd Research Symposium

Beyond Celiac hosted its 2nd Annual Celiac Disease Research Symposium, on October 10, 2018. World renowned celiac disease experts joined us in Philadelphia to discuss the very latest in celiac disease research. View the 2nd Research Symposium  

Watch the 1st Research Symposium

The Bold Beyond Research Symposium on November 9, 2017 was the first presented by Beyond Celiac as part of its mission to advance research to find a treatment and, eventually, a cure for celiac disease. More information can be found on the event homepage, our event summary, of you can watch the event for yourself:  
Research Grant Opportunities
Beyond Celiac started our grant program by announcing the creation of the Society for the Study of Celiac Disease - Beyond Celiac Early Career Research Award, a joint venture to attract exceptionally promising early career academic investigators to the field of celiac disease research. The award provided a clear and bold opportunity to expand the scope of research in this field that, to date, has been underfunded and underexplored. Since then, Beyond Celiac has continued to offer grants to members of the research and medical community who are advancing celiac disease research. Grant Info & Application
The Beyond Celiac Science Team

Salvatore Alesci, MD, PhD, Beyond Celiac Chief Scientist and Strategy Officer

Dr. Alesci, formerly Vice President and Head of R&D Global Patient and Scientific Affairs at Takeda Pharmaceuticals, is a highly regarded physician-scientist and science policy and advocacy influencer. A dynamic and visionary enterprise leader, he has distinguished himself by transforming organizations through designing innovative functions and initiatives, championing and managing complex projects, building high-performing cross-functional teams, and nurturing long-lasting relationships with leaders from various sectors across the healthcare ecosystem. At Beyond Celiac, Alesci will lead the organization’s science team and oversee the design and implementation of the scientific strategy and plan, with a particular focus on deepening partnerships with scientists, key opinion leaders, policy makers and influencers across pharmaceutical companies and academic and government institutions.

Ken Kilgore, PhD, MBA, Beyond Celiac Chief Scientific Investment Officer

Dr. Kilgore, formerly the Director, ImmunoPharmacology at Johnson & Johnson, has more than 20 years’ experience in pharmaceutical research and external drug discovery. He has worked on developing models in many different disease areas and has deep experience in translational research – moving research from bench to bedside – and getting new molecules from early study to clinical trials. Recent efforts have focused on establishing highly-productive joint internal/external research alliances with academic and industry partners. In addition, Kilgore is currently serving on the Investment Committee of BioAdvance Venture Capital in Radnor, PA and is active in new venture development at the University of Michigan and Princeton University. At Beyond Celiac, he will identify and develop innovative funding models and administer the Beyond Celiac scientific grants program.

Kate Avery, MPH, Director of Research and Patient Engagement

Kate supports and engages patients and caregivers who share their experiences and stories with us in pursuit of increased diagnosis and improved disease management and treatment. She has worked on multiple qualitative and quantitative research projects focused on understanding the diagnostic and disease management experience and has long been interested in health communications and the patient journey.

Amy Ratner, Medical and Science News Analyst

With over two decades of experience in journalism, much of it centered around gluten-free living, Amy Ratner joined the Beyond Celiac team in 2016 to bring the latest celiac disease updates to the masses. She regularly reports on and curates the latest in celiac disease research and shares it in patient- and community-friendly language.

The Beyond Celiac Scientific and Medical Advisory Panels

Beyond Celiac has worked with experts in the field of celiac disease through its Medical Advisory Council since its founding. Established in 2003, the Beyond Celiac Medical Advisory Council has played an integral role in establishing and maintaining evidence-based standards for the organization and represents the very best in scientific and medical practice. In 2019, Beyond Celiac expanded its scope of expertise by creating its Scientific Advisory Council as one of the first steps in meeting the goal of finding new treatments and a cure for celiac disease. This new scientific advisory council includes celiac disease, immunology and drug development experts.
Newly Diagnosed with Celiac Disease

What is Celiac Disease?

Celiac disease is a serious, genetic autoimmune disorder triggered by consuming a protein called gluten. Learn more about celiac disease, or read information for people who are newly diagnosed.

How to Get Started with the Gluten-Free Diet

There is a lot to learn about the gluten-free diet. Even though it is overwhelming at first, know that the diet will get easier to manage over time. We're here to get you through it! Getting Started With the Gluten-Free Diet  

Non-Celiac Gluten Sensitivity

Even if your blood test for celiac disease was negative, it may be possible that you have non-celiac gluten sensitivity. Learn more.

Related Conditions

Celiac disease affects every system in the body, so many conditions can be related to the autoimmune disease. View a list of related conditions.
Families & Celiac Disease

Celiac Disease is Genetic

Celiac disease runs in families. If you've been diagnosed with celiac disease, your biological relatives should be tested for it as well.

Talking to Your Family

Your family members can have celiac disease without even knowing it, but having a conversation about it can be difficult. We've made a video that shows how to have this conversation:  

Additional Information

Celiac Disease & Women’s Health

Prevalence in Women

Women in the general population are diagnosed with celiac disease two to three times more often than men. Learn more.

Symptoms in Women

Women have several specific symptoms of celiac disease. For example, unexplained infertility can sometimes be the only sign of undiagnosed celiac disease. Learn more about celiac disease symptoms in women.

Testing & Diagnosis in Women

There's evidence that celiac disease exists in 4%-8% of women with unexplained infertility. However, there are currently no guidelines for celiac disease testing in patients with infertility. Learn more about celiac disease testing for women.

Celiac Disease & Pregnancy

The gluten-free diet is currently the only treatment for celiac disease, but such a diet is frequently found to be low in calcium, iron, fiber, zinc and other vitamins and minerals. Learn how to maximize nutrition during pregnancy.
Kids with Celiac Disease

Information for Kids

Celiac disease can be confusing for kids. We've put together some information for kids with relatively simple terminology and explanations to help them learn about celiac disease. The celiac disease community is active and vocal online. Connect with others living with celiac disease through these blogs.

Information for Parents

Whether you're wondering if your child may have celiac disease or you're looking for some help to keep you and your gluten-free kid on the right track, Beyond Celiac is here to help:

Gluten-Free Recipes for Kids

We've gone through our extensive collection of gluten-free recipes and selected ones that kids may enjoy:
Common Concerns
At Beyond Celiac, we know exactly what you're going through now that you are diagnosed with celiac disease. Many of us have been there, too! We are here to help you every step of the way. In this section, we'll give you advice and best practices for tackling common concerns of people living with this serious genetic autoimmune disease.

Explore this section:

Related Conditions

Non-Celiac Gluten Sensitivity

18 million Americans have non-celiac gluten sensitivity (frequently called, "gluten intolerance"). That’s 6 times the number of Americans who have celiac disease. Learn more about Non-Celiac Gluten Sensitivity  

Other Conditions

View a list of other relation conditions, including anxiety, cancer, depression, dermatitis herpetiformis, gluten ataxia, infertility, intestinal cancer, liver disease, type 1 diabetes, and more.

Think you may have celiac disease?

Symptoms Checklist
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