“Providers in small, rural places are missing knowledge about how celiac disease can present without gastric symptoms.”

“We didn’t know what was wrong with our daughter. Our doctor initially did not think celiac disease because she was so young and because she didn’t have diarrhea.”

“Since being diagnosed Isaiah has grown almost 12 inches and gained over 30 pounds. Celiac disease was stunting his growth.”

“The heart doctors had access to my records, but never once did they bring up that anemia can cause chest pain. I spent over $30,000 out of pocket on multiple tests, one even said it was all in my head.”

“I had migraines, seizures, anemia, stomach pain, anxiety and brain fog.”

“That’s the crazy part, I never had symptoms. At least not any of the ones everyone talks about.”

“I thought my son was dying. He was so weak he couldn’t climb the stairs. His joints were so swollen and he hurt. He slept all the time.”

“My celiac disease was triggered when I was pregnant. My iron levels got so low I had to go to the hospital for several hours at a time for IV iron infusions.”

“When the number came out, he was sure I had celiac disease and that was the answer to all my life’s questions.”

“I had pimples, brittle nails, enamel bleeding, loss of hair, experienced brain fog and fatigue, had difficulty in controlling my emotions.”

“I always left [the hospital and doctors’ offices] with no answers and was told by many doctors that my symptoms were all in my head and that it was just anxiety. In fact, I was actually put on anxiety medication for it.”

“I had asked about doing a test for celiac disease however was told, ‘It isn’t prevalent in people of color.’ I decided to find a doctor with the cultural competency to understand that race does not define your health.”