I am excited to announce the newest addition to the Beyond Celiac team: Jilian Hunt. Jilian recently joined us as our Fundraising Field Manager. Her connection to celiac disease began when her daughter was diagnosed with celiac disease. For years she watched her daughter, labeled as “failure to thrive” as an infant, struggle with chronic stomach aches, headaches, joint pain and more. While the official diagnosis was a relief, the time it took to receive it brought a lot of suffering to their family. It was these struggles that ignited a passion in Jilian that she’d never experienced before: the desire for a better future for her daughter and the entire celiac disease community.
It was this desire that brought Jilian to Beyond Celiac. She wanted to get involved, which led to her serving as chair of the inaugural fundraising event, the Step Beyond Celiac KC5K walk/run in Kansas City. A team of over 50 amazing volunteers pulled off this exciting race that featured over 600 participants from across the country. Online contributions mixed with proceeds from the walk/run led to the event raising an amazing $60,000 for celiac disease research ! On top of that, the volunteer team collected over 3,000 pounds of gluten-free food for the Food Equality Initiative. Erica Dermer, better known as the popular blogger behind Celiac and the Beast, attended as a speaker, signed autographs and helped raised funds with an individual giving page. It was a great success!
Jilian and the rest of our volunteers are a true testament to the power of stepping up! Now, she is an official member of the Beyond Celiac team, helping to ramp up next year’s Step Beyond Celiac KC5K and working to get others involved in organizing events like it across the nation. She will be assisting in recruiting people like YOU to give and create individual giving pages so you can easily raise funds for celiac disease research programs like Go Beyond Celiac in fun and interesting ways.
We’re currently seeking volunteers, so if you’ve ever wanted to get involved, or were unsure how to help those with celiac disease, this is your chance! We would love to speak with you about fundraising ideas that suit your time and talents. Now is the time to make noise and make our voices heard. You can reach Jilian to discuss opportunities at [email protected]org.
If the excitement and response to support celiac disease in Kansas City is any indication of other cities across the country, our opportunities are endless. We can’t wait to get started. Together we can create a world Beyond Celiac!
To living life Beyond Celiac,
Beyond Celiac CEO
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About Chef Oonagh Williams
British born Chef Oonagh Williams holds a culinary arts degree and spends her time cooking, writing, speaking, and educating the public on gluten-free and allergy-free diets. She herself has celiac disease along with other food allergies. When not writing or speaking nationally on food, she teaches cooking classes, hosts dinner parties, and offers one-on-one help. Locally, she teaches healthier food cooking classes including vegetarian cooking for everyone, as most real food is naturally gluten-free and free of many other allergens. Chef Oonagh had the honor of being a speaker at the Boston Celiac Symposium, alongside top doctors from Beth Israel, Mass General, and Harvard Medical School.
Buy herDelicious Gluten-Free Cooking e-book, over 200 pages, full color photos, only $20;
like her Facebook page, Gluten-Free Cooking with Oonagh, where she posts recipes, links to her appearances, and gluten-free products she’s discovered; and connect with her on Skype for help in following a food allergy diet.
In one of the first studies to calculate the amount of gluten consumed, researchers found that many people with celiac disease on a gluten-free diet are regularly exposed to enough of the harmful protein to cause symptoms and intestinal damage…
Celiac disease experts from around the world met recently at Columbia University to discuss research that impacts patients, from the activity of their cells to the decisions they make about diet and healthcare in daily life…
Allergic Living: Inside the Race for a Celiac Disease Treatment
By Lisa Fitterman
From pills to enzymes, vaccines and the quest for a cure, Allergic Living sizes up the state of the ambitious push to treat celiac disease.
Photo credit: Allergic Living/Getty
Things We Don’t Know About Celiac Disease
Maria, Kate and Claire Sample Gluten-Free Beers, Beverages & Snacks
- Go Beyond Celiac: join today to help advance celiac disease research.
- Beyond Celiac Swag: otter-ly adorable merchandise that helps suppoert celiac disease research.
- CCA Statement on Nima: The Canadian Celiac Association reviews the NIMA Gluten Sensor.
- When Going Gluten-Free Is Not Enough: New Tests Detect Hidden Exposure: a recent article from NPR.
- Teenager with Celiac Disease Flourishes on the Basketball Court: star point guard Sydnie Peterson has committed to play basketball at North Idaho College.
- Gluten Detective Giveaway: enter now for your chance to win two at-home gluten testing kits!