March 22, 2018



Note from Alice

Cooking with Oonagh


Hypervigilant celiac disease patients at risk for increased anxiety and fatigue.
Celiac Disease Drug Gets Closer to Becomin the First to Get to Phase 3 Study

Merger provides funding for larazotide acetate to advance in clinical trials
15 Big Celiac Questions Resolved: From Symptoms to Gluten-Free Diet Issues


Gut Reaction Video

Understand how celiac disease works like never before!

Facebook Live Video Recording – Hypervigilance

A discussion of Columbia University’s latest celiac disease study.


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Note from Alice: Welcome Marie Robert, M.D. (Plus Get To Know Our Science Department!)

I am thrilled to announce the hiring of Marie Robert, M.D. as our first Chief Scientific Officer. In this role, Marie will lead the development of a transformational patient-centered research agenda focused on accelerating solutions so that we can live our lives to the fullest, free from worry about every bite.

Investing in our scientific expertise will enable Beyond Celiac to directly impact the direction and focus of celiac disease research, amplifying your voices as we look for much-needed answers. We’re launching this patient-driven science model, proven in areas such as cystic fibrosis, to further our mission of uniting patients and partners to drive diagnosis, advance research, and accelerate the discovery of new treatments and a cure for celiac disease. Simply stated, we are going to cure celiac disease together.

We believe Marie will be a great leader for this new model. As a Professor of Pathology and Medicine at Yale University School of Medicine, Dr. Robert is a nationally recognized gastrointestinal, liver, and pancreatic surgical pathologist with 25 years of experience in clinical diagnosis, teaching, and collaborative scientific endeavors across a wide spectrum of diseases.

Additionally, Marie has studied celiac disease throughout her career. During her residency at UCLA she performed a study of the biopsy findings in refractory celiac disease patients. Her additional work on celiac disease includes contributions to the textbook “Surgical Pathology of the Gastrointestinal Tract, Liver, Biliary Tract and Pancreas,” considered the definitive text in gastrointestinal surgical pathology worldwide. She is the lead author of an upcoming best practices statement on the use of duodenal biopsy in the diagnosis of celiac disease, as well as a study on diagnostic approaches to refractory celiac disease. Dr. Robert is frequently invited to speak on celiac disease around the world. She will continue in her role at Yale.

Also, we’re happy to announce we’ve retained Marla Gold, MD, FACP as a research consultant. With an extensive background in research strategy and public health, Marla will provide oversight to the Beyond Celiac Research Consortium. She is currently Dean Emerita and Professor of Health Management and Policy with the Dornsife School of Public Health at Drexel University. An infectious disease specialist, she has long served on the Beyond Celiac Scientific/Medical Advisory Council and has a personal interest in the organization’s mission because celiac disease affects her immediate family.

And in case you didn’t already know, the Beyond Celiac science team also includes Kate Avery, MPH , Director of Research and Patient Engagement. Kate has been busy the last few months leading the development, launch, enrollment and patient engagement for our online community, Go Beyond Celiac .

We’re so excited about our developing an experienced and passionate science team and the places we’ll go together! Marie and the rest of the department are eager to get to work with all of you to help us realize our vision of a world Beyond Celiac. We look forward to hearing your thoughts and hope that you will invest in our future.

To living life Beyond Celiac,

Alice Bast
Beyond Celiac CEO

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Gluten-Free Cooking with Oonagh

Garlicky Farmer’s Cheese with Walnuts

A cheesy, gluten-free Lithuanian delight! Use this simple recipe to make your own cheese log, cheese ball and more. GET THE RECIPE .

Apple Almond Pudding

Céad míle fáilte, or a hundred thousand welcomes (in Gaelic). Aka, a warm welcome, which perfectly describes this gluten-free dessert! GET THE RECIPE .

About Chef Oonagh Williams

Chef Oonagh Williams

British born Chef Oonagh Williams holds a culinary arts degree and spends her time cooking, writing, speaking, and educating the public on gluten-free and allergy-free diets. She herself has celiac disease along with other food allergies. When not writing or speaking nationally on food, she teaches cooking classes, hosts dinner parties, and offers one-on-one help. Locally, she teaches healthier food cooking classes including vegetarian cooking for everyone, as most real food is naturally gluten-free and free of many other allergens. Chef Oonagh had the honor of being a speaker at the Boston Celiac Symposium, alongside top doctors from Beth Israel, Mass General, and Harvard Medical School.

Buy herDelicious Gluten-Free Cooking e-book, over 200 pages, full color photos, only $20;

like her Facebook page, Gluten-Free Cooking with Oonagh, where she posts recipes, links to her appearances, and gluten-free products she’s discovered; and connect with her on Skype for help in following a food allergy diet.

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New Study Highlights Burdens of an Extremely Strict Gluten-Free Diet

Hypervigilance about the gluten-free diet can lead to reduced quality of life for adults and teenagers, a new study by Columbia University researchers found…


Celiac Disease Drug Gets Closer to Becoming the First to Get to Phase 3 Study

A drug to treat celiac disease will get the funding needed to move to the next important phase of clinical trials as a result of a merger announced today by the biopharmaceutical company that makes it…


Allergic Living: 15 Big Celiac Questions Resolved: From Symptoms to Gluten-Free Diet Issues

By Lisa Fitterman

Maybe you have just been diagnosed with celiac disease, or maybe you were diagnosed several years ago. You’ve been told what it is so many times, you can dutifully recite it by rote: an autoimmune condition in which the body reacts to the presence of gluten, a protein in wheat, rye and barley, by damaging the villi in the intestine that are essential for absorbing nutrients…

Allergic Living.

Photo credit: Allergic Living/Getty

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Gut Reaction Video

Celiac disease sets off complex reactions in your body when you eat gluten. Our video,
Gut Reaction: How Celiac Disease Is Triggered and How It Might Be Treated
explains in detail how celiac disease works and how scientists are approaching ways to treat it.

Our Latest Facebook Live Video

Watch a recording of our recent discussion of Columbia University’s latest celiac disease study on gluten-free ‘hypervigilance’ and what it means for the celiac disease community. WATCH NOW.

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Complete our Celiac Disease Symptoms Checklist to find out if you could have celiac disease and how to talk to your doctor about getting tested.
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