Getting the Conversation Started

Getting the Conversation Started

When it comes to talking to your family members about celiac disease testing, where do you even start?

The answer is here.

At Beyond Celiac, we know that talking to your family about celiac disease testing can be challenging. For years, you have been sharing your experiences with us through surveys and social media. Of all the common needs within the community, one remains the most clear: You and your family would benefit from having more effective ways to talk about celiac disease testing and its genetic link.

Based on community stories and feedback, Beyond Celiac took a look at the conversations happening about family testing. We collaborated on a multi-phase research project with people diagnosed with celiac disease and at-risk family members who remained untested. The result of this important research is the Beyond Celiac Seriously, Celiac Disease campaign.

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Get Started!

Have 5-10 minutes? Download the Dos and Don’tsguide.

Seriously, Celiac Disease Discussion Guide

Download the Beyond Celiac Free Discussion Guide So You Can Have the Right Conversation with Your Family About Celiac Disease Testing.

Only have 1 minute? Watch the Dos and Don’tsvideo below & download the full guide later.

Important: Be sure to have a one-on-one, in-person conversation with your relatives about their genetic risk for celiac disease. The research from Beyond Celiac shows that family members will not take action and get tested if these materials are shared with them in place of having an in-person conversation.


At the time this video was made, Beyond Celiac was known as the National Foundation for Celiac Awareness. Learn more about the name change here.

Still Have Questions After Reading the Guide?

FAQs: Get your remaining questions answered about talking to your family about celiac disease testing.

Give a Little, Get a Little

The health of you and your family is important to us. Please take a 2 minute survey to tell us about talking to your family about celiac disease testing. You could win a prize pack from our sponsor, Schar, just for filling out our survey.
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Beyond Celiac thanks Schar for their support in driving diagnosis of celiac disease.



Complete our Celiac Disease Symptoms Checklist to find out if you could have celiac disease and how to talk to your doctor about getting tested.
Beyond Celiac
  • PO Box 544
  • Ambler, PA 19002
  • Phone: 215-325-1306
  • Toll-Free: 844-856-6692
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The information found on this website is not intended to be a replacement or substitute for professional medical treatment or for professional medical advice relative to a specific medical condition. We urge you to always seek the advice of your physician. There is no replacement for personal medical treatment and advice from your personal physician.