January 2021
January 7, 2021
Note from Alice: A Resolution for a Cure
As we begin a new year, there is so much promise ahead for our community! Even through the many challenges of 2020, a record number of clinical trials for celiac disease were recruiting patients – including the first ever to reach Phase 3 (learn more about the clinical trial process and stages). Our community rallied despite a global pandemic and helped spread awareness, raise funds and sign up for clinial trials! Additionally, many informative studies were published, and Beyond Celiac was there every step of the way to aid in the momentum of celiac disease research and keep you informed. In fact, we are so encouraged by the progress in the field, we announced our resolution to drive treatments towards a cure by 2030.
Today I urge you, as you create your own resolutions for the new year, to make driving research for celiac disease one of yours as well. There are a number of ways you can help us achieve this together.
Here are 5 ideas for you to drive celiac disease research in 2021:
- Donate or fundraise for research – Celiac disease research is woefully underfunded. Research can’t move forward without adequate levels of funding andnot only more but the best scientists in the field. We’re doing our part to end both of these issues through our grants program. Donate today to help us continue to fund the most promising celiac disease research. We steward carefully the money you entrust to us, supporting the approaches that are most promising for patients, as we work towards a cure.You can also help raise funds by creating a benefiting event for Beyond Celiac. It only takes a few minutes to raise critical funds for celiac disease research! Explore the options below to see which one is right for you.
- Fill out research surveys – Your story is crucial to making sure that researchers understand our struggles and the outcomes we need to improve the quality of our lives. . Our online patient research database Go Beyond Celiac collects self-reported data to learn more about life with celiac disease and help researchers better understand this serious genetic autoimmune disease.
- Stay informed – Keep up-to-date on the latest in celiac disease by subscribing to our newsletter and research news e-blasts and/or follow us on social media. Then share the information with friends and family to help increase awareness.
- Participate in a clinical trial – As a person affected by celiac disease, you can play an important role in advancing research by participating in a clinical trial or study. If you’re subscribed to our research e-blasts, you’ll get the latest details on currently recruiting trials for celiac disease.
- Become a Beyond Celiac ambassador – We recently created an ambassador program to empower those with celiac disease by providing outlets to share their experiences, spread positivity and create change in their communities.
Together we can drive research for treatments and a cure and make 2021 the best year yet for celiac disease.
Together for a cure,
Become a Beyond Celiac Ambassador
The Reach Beyond Celiac Ambassador Program will empower the celiac community by providing outlets to share their experiences, spread positivity and create change in their communities.
Ambassadors will be able to tailor the program to their unique passions and skills – using tools and resources provided by Beyond Celiac. Ambassadors will work both independently and collaboratively on initiatives designed to drive Beyond Celiac’s mission forward. The work will be engaging and have a significant social impact while building leadership, strategic planning, collaboration and other skills. If you are energetic, intelligent, and full of big ideas…and you want to make a difference in the world…please apply today!
This program is open to those with celiac disease, non-celiac gluten sensitivity and those who care about those with celiac disease/NCGS. All ages welcome! Deadline to apply is 1/15/21.
Learn More and Apply
Gluten-Free Cooking with Oonagh
Perfect Quinoa: Plain Cooked
There are lots of methods for cooking quinoa. Some simple and others not so much. Renowned gluten-free chef Oonagh Williams explains how she makes the perfect quinoa to use for breakfast, lunch or dinner.
Spanish Style Quinoa
Chef Oonagh Williams’ Spanish ‘rice’ style quinoa recipe.
About Chef Oonagh Williams
Oonagh Williams holds a culinary arts degree and spends her time cooking and educating the public on gluten- and allergy-free diets. She herself has celiac disease and food allergies. She teaches cooking classes, hosts dinner parties, and offers one-on-one help. Buy her Delicious Gluten-Free Cooking e-book and connect with her on Facebook.
Clinical Trials
CeDLara Study
Still experiencing symptoms on a gluten-free diet? The CeDLara Study is currently enrolling qualified patients into their phase 3 study to assess a potential therapy for celiac disease. This study is being conducted to determine if the drug reduces symptoms of celiac disease in patients who are on a gluten-free diet. You may qualify to participate in this study if you:
- Are 18 years old or older
- Are biopsy diagnosed with celiac disease
- Are actively experiencing symptoms related to celiac disease such as abdominal pain, abdominal cramping, bloating or gas
- Have been on a gluten-free diet for at least 6 months
Learn More
PROACTIVE Study
Are you still experiencing celiac disease symptoms despite your best efforts to follow a gluten-free diet?
The PROACTIVE Celiac Study is looking for people between the ages of 18 and 70, who have biopsy-confirmed celiac disease and have been on a gluten-free diet for at least the last 12 months. You will not be asked to ingest gluten in this study. The goal of this phase 2 clinical trial is to test the safety and effects of the investigational medication PRV-015. In combination with a gluten-free diet, PRV-015 aims to reduce symptoms and intestinal inflammation caused by accidental gluten exposure.
Learn More
See if You Qualify
Use referral code: REFBC
Solutions for Celiac Study
The Solutions for Celiac study is researching a drink-based study medication and its ability to reduce symptoms of accidental gluten exposure. Latiglutenase is a study medication designed to break down gluten into inactive pieces in the stomach to protect people with celiac disease. No uncomfortable biopsies or injections.
Locations: Chattanooga, TN | New York, NY | Chesterfield, MI | Rochester, MN
Learn More
Allergic Living Spotlight
Holiday E-Magazine
In their Holiday e-magazine, Allergic Living hears from food allergy moms who show phenomenal creativity. They share how to make “home for the holidays” a magical time, despite the pandemic. This e-magazine brims with allergy-friendly inventions – from holiday tours to PJ parties, side-dish dinners, family book nights and ultimate Zoom special occasions.
News, Events & Updates
Raise Money for Beyond Celiac on Facebook!
Happy birth-month to all our January-born community members! When your big day rolls around, consider “donating” it to Beyond Celiac so that we can help fund new research scientists in the celiac disease field. And a HUGE thank you to everyone who’s created fundraisers for us throughout the years!