Also known as “celiac rash”, this is a severe, chronic skin rash associated with celiac disease. It is intensely itchy, and only resolves on the gluten-free diet, though certain medications may ease the pain.
After visiting a series of dermatologists who dismissed the rash as eczema, I finally insisted on testing a sample, which came back positive for DH.
The rash was disfiguring, it was depressing, and it was all-consuming. The itching kept me awake at night and it took up most of my brain space, my emotions, and my energy.
I first noticed a rash about a year and half before my celiac diagnosis. It was on my elbows, knees, and butt cheeks, and it was very very itchy. So much that I’d wake up in the morning with blood under my nails from scratching in my sleep. Doctors kept misdiagnosing until I finally begged to test it.
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