Programs and Initiatives
Beyond Celiac works to actively meet the most pressing needs of the celiac disease community. We achieve our mission through a variety of tactics and approaches.
The needs that Beyond Celiac currently address are:
Accelerating Research and Forging the Pathways to a Cure
Research has proven that the gluten-free diet alone is not enough to keep most people with celiac disease healthy, nor can it fully eliminate the risk of serious, long-term health consequences. Beyond Celiac works to address this need by serving as the bridge between the community and the researchers with the capability to address challenges through their expert work. Learn how Beyond Celiac is addressing this need.
This includes how Beyond Celiac worked with patients and researchers to create Go Beyond Celiac,an online community for people with celiac disease. Go Beyond Celiac is a place for people with celiac disease to share their experiences with celiac disease. It’s also a place where you can connect with others who have celiac disease, learn more about the latest in celiac disease research, and ask questions of experts.
Joining Go Beyond Celiacwill help break down the walls between our community and scientists so we can work hand-in-hand towards a better life with celiac disease.
The Beyond Celiac Scientific and Medical Advisory Panels
Beyond Celiac has worked with experts in the field of celiac disease through its Medical Advisory Council since its founding. Established in 2003, the Beyond Celiac Medical Advisory Council has played an integral role in establishing and maintaining evidence-based standards for the organization and represents the very best in scientific and medical practice. In 2019, Beyond Celiac expanded its scope of expertise by creating its Scientific Advisory Council as one of the first steps in meeting the goal of finding new treatments and a cure for celiac disease. This new scientific advisory council includes celiac disease, immunology and drug development experts.
Reducing the Time to Diagnosis
People with celiac disease wait an average of 6-10 years for a correct diagnosis – if that diagnosis occurs at all. 83% of people with celiac disease remain undiagnosed or misdiagnosed. Learn how Beyond Celiac is addressing this need.
Helping the Celiac Disease Community Live Better, Longer
While awareness of celiac disease is higher than ever, people living with the genetic autoimmune condition struggle to be taken seriously. As a result, many remain sick, are frequently exposed to gluten and live with symptoms, despite best efforts to remain gluten-free. Learn how Beyond Celiac is addressing this need.
Setting the Record Straight: Beyond Celiac in National Media
Beyond Celiac makes headlines by sharing accurate, evidence-based information about celiac disease within the media. Our work with the press helps celiac disease to be seen as the serious genetic autoimmune disease that it is, not the latest fad diet. Learn more about how Beyond Celiac is addressing this need.
Support Beyond Celiac in Its Important Work
We can’t do it without you. Help us continue to make real change for people living with celiac disease by donating to us today. Donate here.