Tune in June
Celiac Awareness Month may be over, but the conversation continues. Check out our most popular information and find new opportunities to stay engaged, raise awareness, and support the mission.
It was wonderful to celebrate Celiac Awareness Month in May with our community, but our efforts don’t stop on May 31—at Beyond Celiac, it’s always about our community, all the time. Below are more ways to learn about celiac disease, get involved with the community, and move science forward.
- Special Fundraising Campaign—Give this week and your donation will be matched 2:1 until we reach $3,000!
- Tune in to new content—We have an introductory video on celiac disease, a presentation from Dr. Alan Ehrlich with tips for talking about celiac with healthcare professionals, and a discussion among patients on the importance of sharing your story to accelerate research.
- Events Thank You—A hearty thank you to everyone who got involved, in-person or virtually, by attending a Celiac Awareness Month event!
- Burden of Disease Survey—We implore everyone with celiac disease to take the survey alongside two friends who are not gluten-free.
News & Updates
June Giving Opportunity
A generous donor has established a $15,000 matching fund reserved for this month only. To kickstart our campaign, all donations made this week will be matched 2:1, so that every dollar you donate will go three times as far, until we reach our first $3,000 in new donations. After that point, gifts will be matched dollar for dollar, up to $15,000, through the end of June. Help us maximize all of the available matching fund by giving now!
Tune In to New Content
Check out our newest videos!
- What is Celiac Disease?—We made a short, informative video for anyone curious about celiac disease. Check it out on YouTube, and share with anyone the next time someone says, “Celiac? What’s that?”
- Making the Most of Time with your Doctor—Dr. Alan Ehrlich shares how primary care physicians think about celiac disease and provides tips for how patients can prepare for doctor visits, including good questions to ask and ensuring follow-up.
- The Missing Pieces—Science can’t fix what it doesn’t fully understand. Researchers have the tools to develop new treatments, but your lived experience is the essential evidence needed to prove why a gluten-free diet isn’t enough. To learn more about bridging the gap between researchers and patients, we invite you to watch this virtual town hall, “Your Experience is the Missing Piece.”
- Ready to close the gap? Take the 2026 Burden of Disease survey at beyondceliac.org/surveys
Gluten-Free Events—Thank You!
It was wonderful to see everyone—in-person and virtually—get involved with events for celiac awareness month! Whether you went 3.1 miles for a cure with Step Beyond Celiac, cheered on your favorite team at an MLB game to Strike Out Celiac, attended Evening Beyond Celiac to honor founder Alice Bast and board chair Alan Ehrlich, M.D., or made a point to attend some other event, we thank you! We truly can’t build community without community members like you.
Bookmark our gluten-free events page to stay updated on future events. Can’t wait to see more of you!
Request For Research Proposals
The International Society of the Study of Celiac Disease (ISSCD) and Beyond Celiac are seeking applications for the ISSCD-Beyond Celiac Translational Research Award, which is intended to support a project with the potential to advance disease knowledge and accelerate discovery and/or development of treatments for celiac disease. The application deadline is July 1, 2026.
Gluten-Free Recipes
Calico Beans
It’s barbecue season! Bring these beans to any potluck, or try this recipe if you’re looking to get more fiber in your diet. Enjoy with chips, a burger, or on their own!
Cold Cherry Soup – Vyšnių Sriuba
Cherry soup is an Eastern European recipe, served as either appetizer or dessert, normally made with tart or sour cherries with lemon juice and sour cream added. Stay cool and hydrated with this picture-perfect treat!
Trivia Question of the Month
Question
Is farro gluten-free?
Answer
No, farro is not gluten-free.
The word “farro” actually refers to multiple species of wheat: usually einkorn, emmer or spelt. That also means none of these grains are gluten-free. If you are on a strict gluten-free diet, do not eat any of them.
Caregiver’s Corner
Don’t have enough time with your doctor to ask all the questions you have? Consider checking out our podcast episode with the Children’s Hospital of Philadelphia. Lisa Fahey, MD and Betsy Turner, PhD discuss pediatric care of celiac disease, including common concerns like introducing gluten to babies at risk, helping children cope with their diagnosis, transitioning to adult care, and so much more!
Caregiver’s Corner is proudly sponsored by Jones Dairy Farm, maker of certified GF, all-natural sausage & naturally smoked meats.
Research Opportunities
DAISY Study
*Intended for a US audience*
Tired of dealing with celiac? We are seeking volunteers living with celiac disease to join the DAISY clinical research study to help us further develop our knowledge of celiac disease and discover a potential new medication option.
By joining the DAISY Study, you may receive:
- study-required investigational medication at no cost
- study-related care at no cost
- reimbursement for study-related travel expenses.
Health insurance is not required to take part. Are you eligible? Learn More
Burden of Disease Survey
To move promising new drugs through the final hurdles of development, the FDA and pharmaceutical companies need to see undeniable evidence that celiac disease and the gluten-free diet are burdensome enough to warrant more treatment options.
To provide data, Beyond Celiac has opened our 2026 Burden of Disease survey. We implore everyone with celiac disease to take it alongside two friends who are not gluten-free.
Both groups of people are extremely important in showing how different life on a gluten-free diet can be.
GLUTECH
Have you been recently diagnosed with celiac disease? You could help researchers learn if gluten detection technology improves intestinal healing and quality of life.
Eligibility: 18–75 years old, biopsy-diagnosed celiac disease, less than 4 months on a gluten-free diet, and willing to come to one of four sites: Boston, Chicago, Nashville, or New York City/ Additional criteria apply.
Participants will receive an iPad at the beginning of the trial and can also earn up to an additional $565 for participation.
Request for Proposals: ISSCD-BC Grant
The International Society of the Study of Celiac Disease (ISSCD) and Beyond Celiac are seeking applications for the ISSCD-Beyond Celiac Translational Research Award. The Award is a three-year grant of up to $100,000 USD annually, which includes up to 8% in indirect costs*.
The award is intended to support a translational research project, with the potential to advance disease knowledge and accelerate discovery and/or development of treatments for celiac disease. The application deadline is July 1, 2026.
Voices of Celiac: Erin’s Story
“The time my symptoms would show up had no rhyme or reason to them, which left me feeling puzzled as to why I would keep getting these reactions. Some days I could eat bread, pasta, brownies, cookies and nothing would happen to me. Then, on other days, I would get terrible reactions that would last anywhere between 8-12 hours.
When I described my inconsistent symptoms to the doctor, even he didn’t think I had celiac disease due to the randomness of my reactions. However, he decided to test me for celiac disease regardless.”
