Describe your life prior to diagnosis:
I was perfectly healthy until I started developing a painful and itchy rash all over that got progressively more severe over time.
How did you come to know (or suspect) that you have celiac disease?
After visiting dozens of dermatologists who had no clue what was wrong, were taking skin biopsies, and were putting me on a plethora of pills and creams, one finally recommended cutting out gluten. The healing was almost instant.
How long did it take for you to get diagnosed since your first symptoms and what (if any) challenges did you face along the way?
I had awful side effects for 18 months. I lost all self-confidence and thought I would have this rare, incurable disease for the rest of my life. It severely affected my mental state, the way I dressed, my social life, job, and relationships.
Describe your experience living with celiac disease:
It’s given me a whole new perspective on health and diet. I’ve had to learn to cook gluten-free meals and always read nutrition labels. Eating out at restaurants can be tough, but I’m seeing more gluten-free options, which gives me hope.
Is there anything else you’d like to add to your story?
It’s reassuring to know that more doctors are becoming aware of celiac disease. I sympathize with anyone who is going through celiac disease symptoms and is misdiagnosed. I have hope that people are becoming more aware of celiac disease and that we’re not alone in this.
