Describe your life prior to diagnosis.
I was diagnosed at the age of eight, so I vaguely remember the life prior to diagnosis. The only memory I have of that time is heading to the hospital to get some blood tests done and I am nervous thinking about what is about to happen.
How did you find out that you had celiac disease? Did you suspect it beforehand?
I had symptoms such as diarrhea, nausea, bloating, stomach ache, loss of appetite, stunted growth, and so on since time immemorial. After years of struggle and misdiagnosis, a doctor finally suspected that I might have celiac disease, and suggested some blood tests and endoscopy (with biopsy). Through these, I got diagnosed with celiac.
How long did it take for you to get diagnosed since your first symptoms? Is there anything that could have led to you being diagnosed sooner?
As far as I can recall, I always had symptoms but was misdiagnosed for years (three to four years perhaps). Doctors saw it as simple digestive issues but years later, it turned out to be celiac disease instead. I believe if there was proper awareness in India during that time (early 2000s) then I might have been diagnosed early.
Describe your experience living with celiac disease.
When I was first diagnosed with celiac disease at just eight years old, I was completely bewildered. I had no idea what gluten was, why my body reacted so fiercely to food, or why I had to avoid so many things other kids enjoyed so freely. All I understood back then was this: certain foods could hurt me, and avoiding them was the only way to stay alive.
At first, it felt strangely special—like I had a unique story. But over time, that feeling of uniqueness slowly turned into confusion, social isolation, and a growing sense of being different. I often felt like an outsider, wondering why my body couldn’t just be “normal.”
Now, at 23, everything has changed.
I’ve not only understood this disease inside out, but I’ve also found purpose in it. What once felt like a limitation has become my greatest strength. I’m a nutrition scholar now, and I guide fellow celiacs and autoimmuners through their journeys—with knowledge, empathy, and the lived wisdom of my own path.
I create meaningful content to support others, because I never want anyone to feel as lost or alone as I once did. The girl who used to feel broken now lives fully—and helps others heal too.
I am deeply grateful.
To the pain that taught me resilience.
To the disease that gave me direction.
And to the journey that made me… me.
What would a cure mean for you?
I have been diagnosed with another autoimmune disorder, ulcerative colitis, for two years. Though I have two autoimmune disorders, I am not going to give up on my goals. These diseases in fact push me harder to reach my highest potential and give me the true purpose of life.
To everyone who is struggling with chronic illnesses, I see you. I feel you. I understand you. You’ve got this, warrior! We’re in it together.