Patient and Family Advisory Board

We are proud to introduce our Patient and Family Advisory Board (PFAB)!

As either a patient of celiac disease, or caregiver of someone with celiac disease, a Patient and Family Advisory Board (PFAB) member will provide first-hand insight to inform and enrich the research and development of a treatment or cure for celiac disease. The PFAB will help sponsors and industry partners with strategic planning for their initiatives in support of this goal. 

As a member of the Beyond Celiac PFAB, we help serve three objectives:

1. Increase awareness and participation of ongoing and upcoming clinical trials related to celiac disease and gluten-related disorders
2. Facilitate patient-centric research by collaborating with researchers to ensure that patient perspectives and experiences are integrated into the design and implementation of clinical trials
3. Enhance transparent communication framework between patients, researchers, and clinical trial sponsors

Get in Touch

To inquire about partnership opportunities with the PFAB, please reach out to Deanne at [email protected].

For all other questions about the PFAB, please reach out to Isabella at [email protected].