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Celiac Disease is a Serious Genetic Autoimmune Disease. Your Biological Relatives Have an Increased Risk of Developing It Too.

Celiac disease is genetic, meaning that it runs in families. If you’ve been diagnosed with celiac disease, your biological relatives should be tested for it as well. Beyond Celiac offers resources to help you discuss testing with your family. The video below shows how this conversation might happen.

Important things to note:

  • People can have celiac disease without even knowing it.
  • Even those who don’t have symptoms could have celiac disease.
  • Every person is different; symptoms vary greatly from person to person. Some have no symptoms at all.
  • Talking about the gluten-free diet can make your relative less likely to get tested.
A man reading a phone.

Talk to your family. Tell them the facts. Urge them to test.

If you need help having that conversation, we are here to help.

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An important note on social media sharing:

It is tempting to share a video like Seriously, Celiac Disease via social media or email and consider the conversation had. Because we are deeply invested in increasing diagnosis, Beyond Celiac research-tested different approaches and found that family members prefer a one-on-one, in-person conversation. The data showed that family members are less likely to respond positively to the idea of testing if they only receive a link to the Seriously, Celiac Disease video.

Though it can be a difficult conversation, we strongly encourage in-person conversations. Conversations via email, social media, or other online communication are far less effective and may even negatively impact your relative’s openness to testing. Use the companion materials for the video and these tips to help guide your conversation.

Seriously, Celiac Disease is a great resource to send to others living with celiac disease as well! The more people with celiac disease see and share the video with their families, the more people will get tested.