Eventos de investigación
Eventos de investigación
Beyond Celiac research events bring together the leading minds in science, medicine, and advocacy to address the biggest challenges in celiac disease. Through public-facing Symposiums and Summits for professionals, we unite researchers, healthcare providers, patients, and partners to share insights, challenge assumptions, and accelerate the search for treatments and a cure.
Stay Informed
Our Beyond Celiac Research Newsletter shares the latest insights and upcoming events.
Beyond Celiac Research Summit
Beyond Celiac Research Summits are high-level, invitation-only events convening experts from across the scientific and medical communities. Designed to align priorities and break down barriers to treatment development, the Summit is a cornerstone of our science plan to cure celiac disease by 2030.
Benefits:
- Collaborative discussions on clinical trials, drug development, and patient engagement
- Networking with participants including researchers, biotech leaders, healthcare providers, and FDA advisors
- View our Science Plan to see how the Summit informs strategy
Past Summit Highlights
Celiac Disease Research Symposiums
Since 2017, our Symposiums have been public events that bring the latest scientific findings directly to the community. These sessions are designed for patients, caregivers, researchers, and clinicians who want to learn about cutting-edge developments in celiac disease research and treatment.
Key Features:
- Speaker presentations from leading experts in immunology, gastroenterology, and nutrition
- Topics include diagnostics, gluten exposure, microbiome research, and clinical trial updates
- Past Symposiums have featured researchers from Harvard, Columbia, Children’s Hospital of Philadelphia, and more
2019: The 3rd Annual Research Symposium
Held May 30, 2019
Topics included: Non-celiac gluten sensitivity, the “patient voice” and the role of the patient in shaping clinical trials, and the latest updates on recent clinical trials and drugs in the development pipeline.
| Moderator: | Speakers: | More Info: |
| Marie Robert, MD | Joseph Murray, MD | Visit the event page |
| Sonia Kupfer, MD | Watch the event | |
| Linda Deal, MS | Read a summary |
“Clinical trials are research to try to determine if a new medical treatment is safe and does it work,” said Murray, who regularly sees patients and does research at the Mayo Clinic. He said 30 percent of celiac disease patients on a gluten-free diet still have symptoms, demonstrating a “substantial need” for new treatments.
2018: The 2nd Annual Research Symposium
Held October 10, 2018
| Moderator: | Speakers: | More Info: |
| Marie Robert, MD | Ciaran Kelly, MD | Visit the event page |
| Maureen M. Leonard, MD, MMSc | Watch the event | |
| Stephen D Miller, PhD | Read a summary |
“Only through research are we going to be able to improve the quality of life for people in the celiac disease community. And for research to progress, our community needs to be aware, interested and involved,” said Marie Robert, M.D., Beyond Celiac chief scientific officer and symposium moderator.
2017: Bold Beyond, The Inaugural Research Symposium
Held November 9, 2017
| Moderator: | Speakers: | More Info: |
| Alice Bast, CEO of Beyond Celiac | Ciaran Kelly, MD | Visit the event page |
| Anthony J. DiMarino, MD | Watch the event | |
| Daniel Leffler, MD | Read a summary | |
| Ritu Verma, MD |
“If those who have celiac disease don’t participate in research, we will go nowhere. We can’t do research in celiac disease if we don’t have co-operation across the spectrum of individuals who have celiac disease,” Ciaran Kelly, M.D., director of the Celiac Center at Beth Israel Deaconess Medical Center, told a symposium audience of 1,700. “It’s an absolute essential. Without it we might as well go home.”
Celiac Disease, Hidden in Plain Sight: a Beyond Celiac Mini-Conference
Date: November 18, 2021
Time: 12:00 PM to 3:30 PM ET
Where: Virtual, Zoom webinar
Mini-Conference Summary
The goal of the Celiac Disease, Hidden in Plain Sight: a Beyond Celiac Mini-Conference is to discuss those who have been “left behind” in the celiac disease world due to missed diagnosis or challenges to diagnosis.
Discussions will focus on the diagnosis of celiac disease in the following areas:
- Missed diagnosis due to neurological manifestations
- Missed diagnosis due to patient demographics
- The future of diagnosis methods
Recordings of the sessions are available below:
Agenda
- Welcome from Alice Bast, CEO of Beyond Celiac
- Introduction from Salvatore Alesci, MD, PhD Beyond Celiac Chief Scientist and Strategy Officer
- Session 1: It’s All in Your Head: Missed Diagnosis due to Neurological Symptoms of Celiac Disease
Panelists: Patient representative Gabrielle Zimmerman, Kate Avery, MPH, of Beyond Celiac and Nigel Hoggard, MD, and Iain Croall, PhD, of the University of Sheffield. - Q&A with Session 1 panel
- Session 2: You Don’t Look like You Have Celiac Disease: Missed Diagnosis of Celiac Disease Due to Demographics
Panelists: Patient representative Jocelyn Langevine, Amy Ratner of Beyond Celiac, and Pooja Mehta, MD, of Children’s Hospital Colorado. - Q&A with Session 2 panel
- Session 3: You Want Me to Do What? Current and Future Methods of Celiac Disease Diagnosis
Panelists: Maria Luci of Beyond Celiac, Hilary Jericho, MD, of Celiac Disease Center, UChicago Medicine, and Isabel Hujoel, MD, Digestive Health Center at UW Medical Center. - Q&A with Session 3 panel