September is a busy time of year as kids head back to school, routines return and we enjoy the last bits of summer! It’s also an important month for our celiac community, as we recognize Celiac Awareness Day on September 13.
As we head into fall, I hope you’ll take a moment to connect with our community and find a way to get involved. Join us at Más allá de la celiaquía or our First Annual Gluten-Free Kitchen Pickleball Tournament, explore current bills in legislation that could impact people with celiac disease, or learn how you can support research and advocacy.
Every action helps move us closer to a world beyond celiac. Thank you for being part of this community and for continuing to step up with us!
News & Updates
Event: Más allá de la celiaquía
We have our sights set on a cure for celiac disease, and every step you take helps get us closer to our goal! Proceeds raised from our Step Beyond Celiac 5Ks support our initiatives to provide care for patients in the present and a cure in the future.
- Greater Boston: Join us for National Celiac Awareness Day on Sunday, September 13, from 9 AM to noon, at Middlesex Community College
- Greater Philadelphia: Join us on Sunday, October 4, from 9 AM to noon, at Norristown Farm Park
- Virtual: Complete a 5K anywhere in the world, anytime this fall
Event: First Annual Gluten-Free Kitchen Pickleball Tournament
Get ready to rally! Join us Saturday, October 10, at California SMASH in El Segundo for the First Annual Gluten-Free Kitchen Pickleball Tournament, benefiting Beyond Celiac.
Whether you’re ready to hit the court or just want to enjoy the fun, there’s something for you, including gluten-free treats, a vendor fair, a silent auction, and more!
Advocacy: Labeling Gluten
Clearer food labels could make a real difference for people with celiac disease. As of September 2026, there are three bills in the US Congress aiming to require the labeling of gluten-containing grains on food packaging.
Want to learn more? To learn more about the issue, check our our story Patients Want Clearer Food Labels; the US Government is Responding, and learn more about each bill on our advocacy page. If you live in the United States, we encourage you to contact your representatives and ask them to support your bill of choice.
Celebrating National Celiac Awareness Day: 13 Silver Linings
September 13 is National Celiac Disease Awareness Day, a day to recognize the millions of people living with celiac disease and raise awareness of the challenges they face.
Celiac disease can bring challenges, changes and plenty of things you never expected. Even in the difficult moments, there can be unexpected positives along the way. In honor of Celiac Disease Awareness Day, here are 13 silver linings that can come with living gluten-free.
13 Silver Linings of Celiac Disease
Caregiver’s Corner
Did you know that students with celiac disease are eligible for protections in school? Check out our article How To Keep Your Child Safe in School, which goes over the basics of an Individualized Healthcare Plan (IHP) and 504 plans. It’s not too late to get your child set up with one or both for this school year!
Caregiver’s Corner is proudly sponsored by Jones Dairy Farm, maker of certified GF, all-natural sausage & naturally smoked meats.
Noticias sobre investigación
Experimental Drug ZED1227 Protects Against Effects of Gluten Exposure Throughout the Body
Results from a recent study published in the journal BMC Medicine suggest that a potential treatment for celiac disease, ZED1227, may do more than just protect the small intestine from damage associated with celiac disease; it could potentially prevent downstream changes in the bloodstream as well.
Research Opportunities
DAISY Study
*Intended for a US audience*
Tired of dealing with celiac? We are seeking volunteers living with celiac disease to join the DAISY clinical research study to help us further develop our knowledge of celiac disease and discover a potential new medication option.
By joining the DAISY Study, you may receive:
- study-required investigational medication at no cost
- study-related care at no cost
- reimbursement for study-related travel expenses.
Health insurance is not required to take part. Are you eligible? Learn More
GLUTECH
Have you been recently diagnosed with celiac disease? You could help researchers learn if gluten detection technology improves intestinal healing and quality of life.
Eligibility: 18–75 years old, biopsy-diagnosed celiac disease, less than 4 months on a gluten-free diet, and willing to come to one of four sites: Boston, Chicago, Nashville, or New York City. Additional criteria apply.
Participants will receive an iPad at the beginning of the trial and can also earn up to an additional $565 for participation.
Healthcare Satisfaction Survey
Dr. Rikki Roscoe, Assistant Professor at the University of Kansas, is conducting a grant-funded research study to better understand individuals’ experiences in obtaining a celiac disease diagnosis and their satisfaction with the health care they have received since. Participation is voluntary and involves completing a 20–25-minute anonymous online survey. Learn more about the study and participate.
Recetas sin gluten
Butternut Squash Fettuccine Carbonara
Ease into fall with this flavorful butternut squash fettuccine carbonara. This dish pairs sweet squash with savory prosciutto to create a gluten-free pasta perfect for the cooler days ahead!
Gluten-Free Apple Crumble (No Oats)
Celebrate apple season with a comforting classic: apple crumble! Fresh apples tossed with warm spices and topped with a golden, crunchy crumble. Enjoy this cozy dessert on its own or served warm with a scoop of vanilla ice cream.
Trivia Question of the Month
Question
Is soy sauce gluten-free?
Answer
No, soy sauce is not gluten-free. Wheat is a primary ingredient in soy sauce. For a gluten-free substitution, try tamari or coconut aminos. As always, read the ingredients list before purchasing any product to ensure it suits your dietary needs!
Voices of Celiac: Kimberly’s Story
“My daughter, who was 5 at the time, was diagnosed in the winter of 2025. We struggled to figure out the root cause of her various GI and other random symptoms for a year before diagnosis. I had no experience with the intricacies of celiac before her diagnosis.
I made it a personal goal to learn everything I could. My lifeline became the meaningful connections I found—mostly real-life celiac moms—and wonderful organizations like Beyond Celiac that had the reliable resources I needed.”
Read Kimberly’s Story
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