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Letter from Alice: Running Toward a Common Goal
Celiac disease can affect anybody, no matter their age, race, ethnicity or gender. Despite this diversity, we often hear the same sentiment over and over from our community: the gluten-free diet is a burden that restricts your life choices; even on the gluten-free diet, you still experience symptoms; the gluten-free diet is no longer enough—you want options. So many of us want treatments in addition to or in place of the gluten-free diet.
We hear you, and we feel the same! It’s why we work every day to accelerate research toward treatments and a cure. If you also feel passionately about this, we encourage you to donate or fundraise with us at our fall Step Beyond Celiac 5K!
On October 1st, community members across the United States (and international participants, too!) will lace up their sneakers to participate in the Philadelphia and Virtual Step Beyond Celiac races, raising important funds for our celiac disease research efforts. We are truly running together for a cure!
In honor of the October date, we’re offering a Halloween-themed race t-shirt, featuring the tagline “gluten is spooky.” The idea of getting glutened can strike fear in the heart of anybody with celiac disease. This fall, let’s push back against the anxiety and isolation that can flare when you have to choose between a carefree day of fun or eating safely—at our Step Beyond Celiac 5K, you can do both!
Bring your friends down to Blue Bell PA on October 1st and enjoy beautiful weather, gluten-free goodies, activities for kids, and community. Or participate virtually and complete the 3.1 miles with friends and family wherever you are.
With your fundraising help, we may soon live in a world where special, gluten-free events aren’t necessary, where you don’t have to worry about choosing between days of fun and safe foods— a world Beyond Celiac.
Together for a cure,
—Alice Bast
These quick and easy egg bites are perfect fresh out of the oven or meal prepped for breakfasts on-the-go! Make them with any of Jones Dairy Farm’s certified gluten-free, all-natural sausages, including pork, chicken, turkey or maple.
We’re entering the height of apple season! To celebrate, make this apple cake, called obuolinis pyragas in Lithuanian. It’s an easy and delicious cake for family gathering or a weekend treat.
How Does Gluten Affect the Brain?
Many with celiac disease are currently struggling with brain fog and other cognitive symptoms. That’s why we’re funding transformational research into the neurological and psychological effects of celiac disease. You can help us uncover the secrets of the gut-brain connection by giving today—all donations made to this campaign during September will be matched dollar-for-dollar up to $20,000!
September Town Hall: Therapies Beyond the Gluten-Free Diet
Join us on Sep 26 at 3 pm ET for a discussion with Amelie Therrien, MD, gastroenterologist at Beth Israel Deaconess Medical Center. The conversation will center around potential non-dietary therapeutic strategies for celiac disease. Potential treatment strategies currently in clinical trials will be covered along with the role of the gluten challenge and clinical trial designs.
Sign up for our October 5K!
Join us for a family-friendly day of fun, community, awareness, and of course, gluten-free treats! Every dollar raised is one step closer to the ultimate finish line—treatments and a cure for celiac disease. Register by September 10 to receive the boo-tiful 2022 Step Beyond Celiac race tee, pictured to the right.
In-Person Race
Date: October 1, 2022
Time: 9 am–12 pm
What: Family-friendly 5K and gluten-free treats
Where: Outside Health Science Center at Montgomery County Community College, Blue Bell, PA*
Can’t make it in person? No worries, you can race with us virtually from wherever you are!
We would also like to thank our Lead Sponsors Takeda and Independence Blue Cross for their generous support—none of our work would be possible without them.
*Montgomery County Community College is not affiliated with the event and the College should not be contacted regarding the program
Noticias sobre investigación
Rotavirus vaccine does not increase or decrease risk of celiac disease, study finds
The vaccine for rotavirus does not increase or decrease the risk that a child will develop celiac disease, according to a new study from researchers at the University of Michigan.
Five years after diagnosis, more than half of those with celiac disease still have symptoms
Even on a gluten-free diet, more than half of those with celiac disease continue to have symptoms, often the same ones that led to diagnosis.
Ensayos clínicos
PROACTIVE Celiac Study
This is a phase 2 clinical trial to test the safety and effects of the investigational medication PRV-015. In combination with a gluten-free diet, PRV-015 aims to reduce symptoms and intestinal inflammation caused by accidental gluten exposure. No gluten challenge.
Requirements:
• 18-70 years old
• Biopsy-confirmed celiac disease
• On a gluten-free diet for at least the last 12 months
• Still experiencing celiac disease symptoms
Allergic Living Spotlight
Colleges That Go the Distance for Students with Food Allergies
Even after extensive research into college accommodations, parents of allergic students often worry about whether their kids will be safe, especially when living far from home. The good news is that food allergy awareness is growing significantly on campus. There are now shining examples of colleges whose leadership truly “get” the huge difference access to safe and nutritious meals means for the busy student with allergies. Allergic Living examined the accommodations and protocols of four colleges that really go the distance for students with food allergies and celiac disease.
News, Events & Updates
Call for Letters of Intent for a Two-Year Research Accelerator Grant
Beyond Celiac is seeking up to two principal investigators at qualified institutions to address key gaps and challenges and advance celiac disease research. Each grant consists of a two-year award of up to $175,000 annually to fund a project related to celiac disease. The LOI deadline is 6:00 PM ET on September 30, 2022.
Black Americans (63%) are significantly more likely than Hispanic Americans (49%) and White Americans (47%) to have no awareness of celiac disease and/or gluten-sensitivity, suggesting potential health inequities in both diagnosis and treatment.
How to Keep Your Child Safe In School; Creating an IHP or 504 Plan for Celiac Disease
Reach Beyond Celiac Ambassador Rochelle Siezega knows that having a gluten-free child in school can be stressful and challenging. Luckily, IHPs and 504s can help protect your child when they’re in school. Learn more about these two plans and how to create them.
Beyond Celiac and Celiac Disease Featured in San Antonio News
Beyond Celiac founder Alice Bast and Ambassador Alexandra De Ghenghi recently discussed celiac disease and the gluten-free diet with Diana Rocco of NBC Channel 4 News 4 San Antonio.
Shop Charitably with Amazon Smile
You can donate to Beyond Celiac without spending an extra dime! When you buy eligible items on Amazon Smile, 0.5% of your purchase will be donated to Beyond Celiac at no extra cost to you. Here’s how:
- Visit smile.amazon.com.
- Search for “Beyond Celiac” in the search bar on the bottom right-hand side of your screen.
- Select Beyond Celiac.
- Start shopping!
Raise Money for Beyond Celiac on Facebook!
Happy birth month to all our September-born community members! When your big day rolls around, consider raising money for Beyond Celiac so that we can help fund new research by scientists in the celiac disease field. And a HUGE thank you to everyone who’s created fundraisers for us throughout the years! These fundraisers help make our important work possible.