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Letter from Alice: We’re Here to Help You Navigate the Holiday Season
Happy November! We are now officially in the holiday season; coming up in just a few short weeks are Thanksgiving, Black Friday, Giving Tuesday, Hanukkah, and then of course Christmas and New Year’s Eve in December. This time of year is always a whirlwind of food and family, and before you know it, you’ll be giving gifts to loved ones and friends.
We know that the holidays can be a challenging time for our community, especially for those of you who are newly diagnosed with celiac disease or a gluten sensitivity. We at Beyond Celiac want to do all we can to help you manage this time of year, which is so heavily focused on traditional foods that you might not be able to eat anymore. Sometimes our families don’t understand, or are less than supportive, or may want you to eat the traditional stuffing because “one bite won’t hurt, will it?” Kudos to all of us when we stay resolute! For me, the immediate health consequences of accidental gluten exposure are so severe that I am not even a little tempted, but celiac disease can still leave us feeling left out and isolated at times.
To help navigate this busy season, we hope you will take advantage of our collection of holiday recipes. I bet you can surprise your Aunt Sylvia with a new gluten-free holiday favorite. And I have a favor to ask; would you consider having a serious one-on-one conversation with your relatives about their risk for celiac disease if you haven’t already? Perhaps you can help your Cousin Jerry get on the path to diagnosis and a brighter future. There is nothing more rewarding than giving the gift of health.
Speaking of gifts, if you yourself need any gift ideas, I invite you to consider making a donation to Beyond Celiac in a friend or loved one’s name. Aside from Christmas, the special occasions of Thanksgiving, Giving Tuesday, Hanukkah, and Black Friday are also great opportunities for donations. Accelerating research for a cure or treatments beyond the gluten-free diet is the gift that will keep on giving, and with our strategic science plan, renowned science team, and support of clinical trials and research, I am wholly confident that we will get that treatment or cure before 2030 with your support.
But we do need your support. Beyond Celiac is a nonprofit organization, and we run solely on the generosity of donors big and small. We extend our thanks to all past and current donors, and ask you to become a donor soon, if you aren’t already.
You can make a one-time donation now or you can become a recurring donor with Celiac Champions.
Happy holidays!
Together for a cure,
Alice
The grand prize winner of our Holiday Recipe contest is Deb’s pizzelles! A pizzelle is a traditional Italian waffle cookie. Pizzelle literally means little pizza, but it’s definitely a sweet treat! These are actually the base cookies in a cannoli. You can add colored sprinkles for a fun effect.
Caron’s Chicken and Cornbread Dressing (or Stuffing)
This recipe was the second-place winner of the 2021 Beyond Celiac Gluten-Free Holiday Recipe Contest! Most people eat stuffing for Thanksgiving, but this dish is too tasty to have just once a year.
To see all the top recipes from the contest, visit the contest page.
Register for Our Celiac Disease Mini-Conference
Join us virtually on November 18 for Celiac Disease, Hidden in Plain Sight: a Beyond Celiac Mini-Conference to discuss those who have been “left behind” in the celiac disease world due to missed diagnosis or challenges to diagnosis.
Discussions will focus on the diagnosis of celiac disease in the following areas:
- Missed diagnosis due to neurological manifestations
- Missed diagnosis due to patient demographics
- The future of diagnosis methods
Join Celiac Champions
Join the Celiac Champions and give monthly to support research toward treatments and a cure for celiac disease. Our Celiac Champions program is a community of our most dedicated donors, who support our work with sustaining monthly gifts. When you join the Celiac Champions, you become a part of a special team working to find treatments and a cure for celiac disease—you become part of the solution!
Mark Your Calendar: #GivingTuesday is 11/30
#GivingTuesday is an annual global day of giving! Mark your calendar and be a part of something big by donating to Beyond Celiac on November 30.
Thank you to Evening Beyond Celiac Sponsors
Thank you to everyone who made our Evening Beyond Celiac – At Home a successful night of celebrating and fundraising for celiac disease research. We’d like to share a special note of gratitude to our Presenting, Lead, and Collaborator sponsors; we could not have done this without you:
- Anonymous
- Alice and Will Bast
- Janine and Kane Brenan
- Elizabeth and Todd Hammer
- Sarena Snider and The Snider Foundation
Lead
- Alan M. Ehrlich
- Amy and Bill Green
- Barb and Bruce Powers
- The Coca-Cola Company
Collaborating
- Brittany and Weston Baker
- Jane C. Davis
- Kevin Goldberg
- Pamela and Gregg Melinson
- The Ravitz Family Foundation
Noticias sobre investigación
PRV-015: A monoclonal antibody treatment in late-stage trials for celiac disease
Monoclonal antibodies can be used for treating many different types of disease and are being studied in celiac disease after showing proof-of-concept in earlier trials.
Black people and those with Medicaid and Medicare face disparity in diagnosis of celiac disease
If you are Black or have public insurance and also have symptoms associated with celiac disease or inflammatory bowel disease, your chance of getting proper follow-up for diagnosis is greatly reduced, a recent study found.
Ensayos clínicos
PROACTIVE Study
Are you still experiencing celiac disease symptoms despite your best efforts to follow a gluten-free diet?
The PROACTIVE Celiac Study is looking for people between the ages of 18 and 70, who have biopsy-confirmed celiac disease and have been on a gluten-free diet for at least the last 12 months. You will not be asked to ingest gluten in this study. The goal of this phase 2 clinical trial is to test the safety and effects of the investigational medication PRV-015. In combination with a gluten-free diet, PRV-015 aims to reduce symptoms and intestinal inflammation caused by accidental gluten exposure.
Learn More
See if You Qualify
Use referral code: REFBC
Allergic Living Spotlight
Gluten-Free or Not? 10 That Can Stump Even the Most Informed
Going gluten-free sounds easy enough when you’re first diagnosed with celiac disease, but the diet can be trickier than most people expect. “Many people with the autoimmune condition end up perplexed in the grocery aisle, or find themselves staring at a restaurant menu – trying to recall whether an ingredient is or isn’t gluten-free.” Review this list of 10 ingredients that can confuse even the most informed follower of the gluten-free diet.
News, Events & Updates
Cheer on our podcast guest Gracie Hunt, Miss Kansas USA, as she competes for the Miss USA crown on November 29. Gracie has celiac disease too!
Shop Charitably with Amazon Smile
You can donate to Beyond Celiac without spending an extra dime! When you buy eligible items on Amazon Smile, 0.5% of your purchase will be donated to Beyond Celiac at no extra cost to you. Here’s how:
- Visit smile.amazon.com.
- Search for “Beyond Celiac” in the search bar on the bottom right-hand side of your screen.
- Select Beyond Celiac.
- Start shopping!
Raise Money for Beyond Celiac on Facebook!
Happy birth month to all our November-born community members! When your big day rolls around, consider raising money for Beyond Celiac so that we can help fund new research by scientists in the celiac disease field. And a HUGE thank you to everyone who’s created fundraisers for us throughout the years! These fundraisers help make our important work possible.