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Letter from Alice: Happy Celiac Awareness Month!
Happy Celiac Awareness Month! We have so much going on here at Beyond Celiac and so many ways for you to get involved, learn, raise awareness, and help accelerate research for treatments and a cure! I can’t wait to tell you about it.
First, we are IN IT TO WIN IT! We have returned for the fifth year of the Step Beyond Celiac 5K, and we invite you to sign up, raise money, and run or walk to support the effort. As I write this, we are already 76% to our goal of raising $65,000 to support our research initiatives and other vital programs. You can help put us over the top!
Next, we have big plans to raise awareness, and you can help! Not only have we created and organized loads of shareable facts, infographics, videos and more on our website, we will be announcing big news later in the month. If you don’t already follow us on Instagram or Facebook, now’s the time so you can stay in the know. Plus, we are collaborating internationally with other celiac disease organizations to Shine a Light on celiac disease. Perhaps a building near you will light up in acknowledgement of this serious genetic autoimmune disease.
And as part of Celiac Awareness Month, we hope you will take a little time to find out more about the latest in celiac disease research. We posted recordings from the Beyond Celiac 2022 Research Summit and we expect you hear information that you won’t have found anywhere else. Could the prevalence rate of celiac disease really be higher than thought? If people could get diagnosed earlier, how much could the risk of damage to brain structures be cut? Even after your intestinal villi are repaired, does the lining of the small intestine really return to its former structure? I bet you learn something new for sure. I look forward to hearing your thoughts…..
We will also be hosting a special Town Hall with medical doctors Dan Leffler and Doug Jacobstein, both of whom are involved in research for treatments in celiac disease. Bring your questions and learn more about the clinical trials process!
Celiac disease is serious business, but it is heartening that we can all come together during May to raise our voices and raise awareness, so that we can live life to the fullest and eat without fear.
Together for a cure,
-Alice Bast
Try this simple recipe for an easy Cinco de Mayo dinner. It’s easily customizable and can be made dairy-free and or vegetarian without much effort. Add hot sauce if you’re up for a challenge!
Slow Cooker Pulled Pork with Creamy Coleslaw
Many people will be grilling for Memorial Day. You can make the day easier by making this slow-cooker pulled pork recipe. Bring the coleslaw for a creamy and acidic kick!
Celebrate Celiac Awareness Month with the Step Beyond Celiac 5K!
We have our sights set on a cure for celiac disease and every step you take helps get us closer to our goal. Proceeds raised from our Step Beyond Celiac 5Ks support our work to accelerate treatments and a cure for celiac disease.
The 5K is virtual, so anyone and everyone can participate. A virtual race means you can complete the 5K whenever you want in May, wherever you are. Feel free to walk, run, bike or roll the distance, whatever you prefer.
Sign up any time before the end of May. Make sure to tag any of your photos with @stepbeyondceliac5K on Instagram and Facebook!
Thanks to Crunchmaster, our Celiac Awareness Month Digital Sponsor!
None of our amazing work would be possible without sponsors like Crunchmaster. Crunchmaster is committed to proving that wholesome snacks can be enjoyed without compromise. Most importantly, all their products are certified gluten-free by the Gluten-Free Certification Organization and made on dedicated, certified gluten-free production lines.
Beyond Celiac Research Summit Recap
On April 6, 2022 Beyond Celiac held its 3rd research summit. The event, The Evolving Landscape of Celiac Disease, brought together celiac disease clinician-scientists, neuroscientists, immunologists, patients, entrepreneurial drug developers, leaders in health equity and more. You can watch recordings of all of our presentations on our Summit page, including research on the prevalence of celiac disease, brain damage caused by gluten, and diversity initiatives in our community.
Noticias sobre investigación
Kids who had no symptoms when diagnosed with celiac disease through screening often don’t stick with the gluten-free diet as young adults
According to an 20-year follow-up Italian study, young adults who had been diagnosed with celiac disease as part of a broad screening program when they were kids have often abandoned the gluten-free diet.
Cystic fibrosis patients changed the future of the disease — can celiac disease emulate their success?
Cystic Fibrosis patients banded together and changed the future for those living with the disease. Can increased patient participation produce similar results for celiac disease?.
Ensayos clínicos
PROACTIVE Study
Are you still experiencing celiac disease symptoms despite your best efforts to follow a gluten-free diet?
The PROACTIVE Celiac Study is looking for people between the ages of 18 and 70, who have biopsy-confirmed celiac disease and have been on a gluten-free diet for at least the last 12 months. You will not be asked to ingest gluten in this study. The goal of this phase 2 clinical trial is to test the safety and effects of the investigational medication PRV-015. In combination with a gluten-free diet, PRV-015 aims to reduce symptoms and intestinal inflammation caused by accidental gluten exposure.
Allergic Living Spotlight
Finding the Right Treatment for Relief From Spring Allergies
Ah, spring! A season marked by warmer temperatures, beautiful flowers, and, for some, perpetually stuffed noses and unending sneezing. Don’t let spring allergies stop you from enjoying the great outdoors this year; check out this article to get an overview of the available options for treating common spring allergies.
News, Events & Updates
Virtual Town Hall: How Patients Can Change the Future of Celiac Disease
Join us for a discussion with Dan Leffler, MD, MS, AGAF, and Doug Jacobstein, MD, as they discuss the importance of patient participation in accelerating celiac disease research, along with some of the exciting studies currently moving ahead because of patient involvement.
Shop Charitably with Amazon Smile
You can donate to Beyond Celiac without spending an extra dime! When you buy eligible items on Amazon Smile, 0.5% of your purchase will be donated to Beyond Celiac at no extra cost to you. Here’s how:
- Visit smile.amazon.com.
- Search for “Beyond Celiac” in the search bar on the bottom right-hand side of your screen.
- Select Beyond Celiac.
- Start shopping!
Raise Money for Beyond Celiac on Facebook!
Happy birth month to all our April-born community members! When your big day rolls around, consider raising money for Beyond Celiac so that we can help fund new research by scientists in the celiac disease field. And a HUGE thank you to everyone who’s created fundraisers for us throughout the years! These fundraisers help make our important work possible.