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Letter from Alice: Happy New Year!
As the holiday season comes to a close and a new year begins, I find myself reflecting on the significant strides we made in 2022 toward our mission of finding treatments and a cure for celiac disease. Here are just a few of our numerous achievements from the last year:
Research Highlights
- A research summit that brought together top researchers, patients and other stakeholders to collaborate on overcoming remaining barriers to a cure
- Major contributions to the body of science through presentations of original Beyond Celiac research and Beyond Celiac-funded research at the 2022 International Celiac Disease Symposium
- Multiple new grant opportunities opened, positioning us as the premier international celiac disease research funder
- An increase of patient-reported data in our Go Beyond Celiac registry to inform research and clinical trials
- A new multi-year partnership with Takeda to identify and reduce disparities in celiac disease diagnosis and management that aims to help minority patients access and participate in clinical trials
- A new Early Career Research Award granted to study the role of CD8 T-cells in celiac disease through an innovative research model
- Recruitment for several clinical trials for potential celiac disease treatments
Awareness and Education Highlights
- An expansion of our Reach Beyond Celiac ambassador program to include 40 volunteers across the US
- Recognition by Ragan Awards for our Voices of Celiac campaign
- Two Step Beyond Celiac 5Ks
- Six virtual Ayuntamientos featuring researchers, medical professionals and other experts, which drew 5,236 registrants
- 6,500 submissions on our symptoms checklist
- Over 3 million Beyond Celiac website page views
These accomplishments are laying the groundwork for 2023 to be a great year. We will also be celebrating the 20th anniversary of Beyond Celiac, which we hope you can join us for! After all, we couldn’t do this life-changing work without you—thank you for participating in surveys, attending events, commenting on social media, raising money and engaging with us!
I can’t wait to see what 2023 holds for our amazing celiac disease community. I believe there’s never been a more exciting time to be a person with celiac disease, as we see so much hope and promise on the horizon.
Wishing you a healthy, happy, and gluten-free year!
Together for a cure
—Alice Bast
Hearty, Healthy, Slow Cooker Soup
In the cold months of winter, this is the perfect meal: warm, nutritious, easy to prepare and delicious! It can also be made vegan by substituting beans and vegetable broth for chicken and chicken broth.
Roasted Beet(root) Salad with Pecans
Winter is the best season for beets! This root vegetable makes a perfect sweet alternative for those looking to cut down on calories in the new year without sacrificing flavor. Make this roasted beetroot salad with pecans as a side to a main meal or add extra greens to make it a main salad.
January Town Hall: The State of Celiac Disease
Join us on January 18 at 2 PM ET as we discuss the biggest celiac disease news from 2022 and what we believe the future holds. Additionally, we’ll kick off a celebration of 20 years of providing life-changing services to the celiac disease and non-celiac gluten sensitivity community. As always, this is a FREE event!
Research Webinar
Research Webinar
Noticias sobre investigación
Top 5 research news stories from Beyond Celiac in 2022
As we approach the end of 2022, we are reflecting on the significant strides made this year toward finding treatments and a cure for celiac disease.
Voices of Celiac: Alexis’ Story
“Prior to my diagnosis, I was constantly tired and struggling, and I always had joint pain, brain fog, nausea, and swelling […] I looked for any explanation for why I felt exhausted, and got blood test after blood test just for the doctors to tell me I was a perfectly healthy 18-year-old girl and send me home again and again. Finally, I stood up for myself and asked for a full panel blood test—that’s when I found out I had an autoimmune disease.”
Ensayos clínicos
PROACTIVE Celiac Study
This is a phase 2 clinical trial to test the safety and effects of the investigational medication PRV-015. In combination with a gluten-free diet, PRV-015 aims to reduce symptoms and intestinal inflammation caused by accidental gluten exposure. No gluten challenge.
Requirements:
• 18-70 years old
• Biopsy-confirmed celiac disease
• On a gluten-free diet for at least the last 12 months
• Still experiencing celiac disease symptoms
Allergic Living Spotlight
Can People with Celiac Disease Benefit from Exercise?
When we think of controlling celiac disease we usually think of food—eating a strict gluten-free for life. But now a team of researchers is looking at whether exercise may also play a role in managing the condition. Learn more on the Allergic Living website.
News, Events & Updates
Opera Star Arturo Chacón-Cruz wants to change the statistics.
In this article, we’ve listed a few conditions that are often misdiagnosed as celiac disease (and vice versa!) or have many similar symptoms. We encourage you to review this and bring any information to your doctor if you want to learn more or do additional testing.
‘Tis the season for giving back! Beyond Celiac Ambassador and Vanderbilt Junior Noah Lustbader is getting into the holiday spirit by hosting events to spread awareness of celiac disease and assistance to his local gluten-free community.
You can donate to Beyond Celiac without spending an extra dime! When you buy eligible items on Amazon Smile, 0.5% of your purchase will be donated to Beyond Celiac at no extra cost to you. Here’s how:
- Visit smile.amazon.com.
- Search for “Beyond Celiac” in the search bar on the bottom right-hand side of your screen.
- Select Beyond Celiac.
- Start shopping!
Raise Money for Beyond Celiac on Facebook!
Happy birth month to all our January-born community members! When your big day rolls around, consider raising money for Beyond Celiac so that we can help fund new research by scientists in the celiac disease field. And a HUGE thank you to everyone who’s created fundraisers for us throughout the years! These fundraisers help make our important work possible.