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Letter from Alice: Happy New Year TWO You
Welcome to 2022! I hope everyone had a happy, gluten-free holiday season, and is feeling ready to jump into a new year.
January is always an opportunity to start fresh, with renewed vigor and creativity, and our work at Beyond Celiac is no different. We have lots of exciting news and events coming in 2022 and while I can’t reveal all of the surprises we have lined up just yet, I can talk about one things; we will be funding new, innovative research with an Early Career grant. In partnership with the Society for the Study of Celiac Disease (SSCD), Beyond Celiac is seeking applications from highly motivated and talented academic investigators for a grant to fund celiac disease research. By providing resources for the next generation of researchers, we’re encouraging talented scientists to dedicate their work to celiac disease. Grant applications close in February 2022. Learn more.
In addition to introducing new initiatives, we will of course continue work on projects from 2021, such as
- Recruiting for clinical trials like the Proactive study (PRV-015) and Solutions for Celiac study, and supporting the CeDLara study, all of which are developing treatments for celiac disease.
- Supporting researchers, like the team at Sheffield University studying how the brain is damaged by celiac disease, and how those changes affect mental health. Listen to the lead researchers from the Sheffield study discuss their work in a recording from our November Mini-Conference (timestamps 9:42–1:15:40). Other exciting research we support includes the team at Oxford University led by Paul Klenerman, which has identified increases in signatures of certain cells in the villi of celiac disease patients, even when they are on the gluten-free diet, and an increase in cells that are key players in the connection between the gut and the brain. This and other findings may offer some clues into future treatments and diagnostic tests.
- Using our patient registry app Go Beyond Celiac to collect self-reported data via surveys about the celiac disease patient experience and gluten-free living. If you want to get involved it’s always free to sign up and download the app!
- Our diversity work alongside the National Minority Quality Forum to ensure that no patient is missing a diagnosis due to their background and/or demographics. Everyone deserves to be properly diagnosed.
- And, as always, interacting with and supporting our community online through social media and Town Hall events!
Rest assured that all of us at Beyond Celiac are tackling the big problems facing the celiac disease community. We’ll be working on many promising projects in 2022, so stay tuned by following us on Instagram, Facebook and Twitter, and subscribing to our email list. If you would like to support us more directly, you can become a Celiac Champion and donate any amount you like automatically on a recurring basis.
Our New Year’s resolution, as it was last year and the year before, is to find a treatment for celiac disease. We are closer than ever before to making that resolution a reality, and we hope you join us on the journey.
Together for a cure,
Alice
Goat Cheese & Fuji Apple Salad
A healthy and tasty recipe is just what you need to reset your gut after the holiday season. Try this goat cheese and Fuji apple salad for an easy dinner that will also get you most of your daily intake of fruit and vegetables.
Did you know that January is the coldest month of the year in the northern hemisphere? This recipe for a hot bowl of hearty broth with vegetables and noodles is the perfect meal to warm you up in the dead of winter.
Thank you to everyone who donated to our Forging a Future Beyond Celiac campaign! With your help we surpassed our goal of $35,000, raising almost four times that amount! Your support will help in the development of real treatments and a cure for everyone currently living with celiac disease and for those who have yet to be diagnosed. Beyond Celiac firmly believes that with our science plan, a cure is possible by 2030.
Noticias sobre investigación
Top 5 Beyond Celiac research news articles of 2021
After years of working to accelerate celiac disease science, Beyond Celiac was thrilled to see a burst of new and exciting research published in 2021. We compiled the top 5 most popular research stories of 2021, with concern about the accuracy of negative celiac disease blood tests topping the list.
You are more likely to get migraines if you have celiac disease, especially if you are a woman
People with celiac disease get more headaches, including migraines, and women get more migraines than men, according to a new study. In the study of 1,000 adults with celiac disease registered at Shariati Hospital in Tehran who were matched with people who don’t have celiac disease, the prevalence of migraines was nearly double in those with celiac disease.
Ensayos clínicos
PROACTIVE Study
Are you still experiencing celiac disease symptoms despite your best efforts to follow a gluten-free diet?
The PROACTIVE Celiac Study is looking for people between the ages of 18 and 70, who have biopsy-confirmed celiac disease and have been on a gluten-free diet for at least the last 12 months. You will not be asked to ingest gluten in this study. The goal of this phase 2 clinical trial is to test the safety and effects of the investigational medication PRV-015. In combination with a gluten-free diet, PRV-015 aims to reduce symptoms and intestinal inflammation caused by accidental gluten exposure.
Learn More
See if You Qualify
Use referral code: REFBC
Allergic Living Spotlight
When Grandparents Don’t Get Gluten-Free: 4 Steps to Educating About Celiac Disease
Many grandparents cherish moments shared with their grandchildren, but what happens when that grandchild is diagnosed with celiac disease? What do you do when grandchildren can no longer eat grandma’s famous cookies, or dinners made from family recipes handed down for generations? What happens when grandparents just don’t understand celiac disease? Beyond Celiac founder and CEO Alice Bast has a few tips for making sure your child is safe with their grandparents.
News, Events & Updates
January Town Hall: Breakthroughs in Celiac Science
Join Beyond Celiac science team members Amy Ratner and Kate Avery, MPH, as they discuss the most exciting celiac disease research published in the past year. They will also share peeks at what is coming down the pipeline and the incredible science Beyond Celiac is funding. This free, virtual event takes place January 26 at 2 PM ET.
NIH Announces Funding Aimed at Celiac Disease
The National Institutes of Health (NIH) announced new funding to support research specifically aimed at celiac disease. Beyond Celiac applauds this government commitment and we encourage applications for these special celiac disease research grants.
Shop Charitably with Amazon Smile
You can donate to Beyond Celiac without spending an extra dime! When you buy eligible items on Amazon Smile, 0.5% of your purchase will be donated to Beyond Celiac at no extra cost to you. Here’s how:
- Visit smile.amazon.com.
- Search for “Beyond Celiac” in the search bar on the bottom right-hand side of your screen.
- Select Beyond Celiac.
- Start shopping!
Raise Money for Beyond Celiac on Facebook!
Happy birth month to all our January-born community members! When your big day rolls around, consider raising money for Beyond Celiac so that we can help fund new research by scientists in the celiac disease field. And a HUGE thank you to everyone who’s created fundraisers for us throughout the years! These fundraisers help make our important work possible.