Care Today, Cure Tomorrow
Our constant focus is on providing care today and a cure for tomorrow for the celiac community and all who support it. Find ways to care for yourself or your loved one with celiac disease with tips and tools in this newsletter. Here are a few highlights:
- For 23 years, Beyond Celiac Founder Alice Bast has set the tone and trajectory of our work. Now, she’ll be funneling her talents into a new role, Executive Director, Impact and Innovation.
- This month’s Caregiver’s Corner features a roundtable discussion of parents sharing their tips for raising kids with celiac disease.
- See if you’re eligible to participate in the AVALON clinical trial, looking at preventing or reducing symptoms from accidental gluten exposure.
Care, Cure, Celiac, Caregiver, Clinical, so many C words—but we can’t spell Cure without U! If you want to care for your future self, consider making a gift to our February campaign so that we can continue this vital work.
News & Updates
Founder Alice Bast Funneling Talents Into New Role
Beyond Celiac Founder and Chief Executive Officer Alice Bast will transition to the new position of Executive Director, Impact and Innovation. In this specialized role, Alice will focus on shaping and executing high-level strategic priorities, securing major and transformational funding for the organization, and leading Beyond Celiac Investments (BCI)—the first-ever venture philanthropy program in celiac disease.
No Cure Without U
We have a motto here at Beyond Celiac: care today, cure tomorrow. We believe everyone with celiac disease deserves a full and healthy life. This month, we encourage you to take a step toward a future beyond celiac, because we can’t spell cure without u.
Thanks to generous friends in our community, a $15,000 matching fund is available through February 28th, so every dollar you give today will be doubled to accelerate initiatives for treatments and a cure—and expand Beyond Celiac resources to navigate daily life.
Recetas sin gluten
Cauliflower Parmesan Soup
Tasty food doesn’t need to be complicated, and this soup proves it. A few simple ingredients, simmered and blended together for a rich entree. Pair it with a piece of crusty bread or table crackers for added crunch!
Easy Chocolate Mousse
An easy and customizable gluten-free chocolate mousse recipe, perfect for Valentine’s Day or a special occasion! Elevate it by using pretty tea cups or ramekins instead of glass bowls, and top with whipped cream and fruit for a fresh touch.
GF Valentine’s Day Menu
Looking for a last-minute gluten-free treat to make for a Galentine’s party or your significant other this Saturday? Look no further! We’ve got options for breakfast, appetizers, main courses, and, of course, desserts. Enjoy!
Trivia Question of the Month
Question
Is whey gluten-free?
Answer
Yes, whey is gluten-free. You may see whey listed as “whey concentrate,” “whey isolate” or “whey hydrolysate” on the package, all of which are gluten-free.
However, if you’re building muscle, please note that not all whey protein powders are gluten-free.
Caregiver’s Corner
This month, check out our parenting roundtable, episode 38 of our podcast Celiac Straight Talk. In it, Reach Beyond Celiac Ambassadors explain their approach to raising children with celiac disease, including planning family vacations, becoming an advocate for their kids’ health, and how to get your little one the care and food they need at home, at school, or at a friend’s house.
Caregiver’s Corner is proudly sponsored by Jones Dairy Farm.
Research Opportunities
AVALON
*Intended for a US audience*
AVALON is a phase 1 clinical trial assessing the investigational drug VTP-1000 in adults with celiac disease. This investigational targeted immunotherapy is designed to prevent or reduce symptoms from accidental gluten exposure by promoting tolerance to gluten.
- 18–65 years old
- Celiac disease confirmed by biopsy within the past 10 years
- Have been on a gluten-free diet for 12+ months
Additional criteria apply, and compensation for your time and travel may be available. Learn more at beyondceliac.org/avalon.
Survey on Dietitian Approaches to Managing Celiac Disease
The purpose of this study is to better understand how nutrition professionals around the world approach the education and communication of the gluten-free diet to newly diagnosed patients with celiac disease, with a particular focus on practices related to gluten cross-contact. Participation involves completing an anonymous online survey, which is expected to take approximately 20 minutes.
Voices of Celiac: Robert’s Story
“I had been missing law school classes for a while, which I stupidly chalked up to a particularly intractable and aggressive form of food poisoning. I was getting so weak it was hard for me to walk to my car in front of my house, let alone make it to class. As a result, I had a Zoom call with a professor to discuss my absences. She was so alarmed from my obvious physical deterioration that she told me to go to the hospital, and that she would discuss this with the Dean and note that I was clearly unwell.”
