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Letter from Alice: Living the Sweet Life
Did you know that about half of shoppers give their sweetheart chocolate on Valentine’s Day? Heart-shaped boxes are particularly popular, as cliche as they may seem. But many who have celiac disease or have loved ones with celiac disease know that food isn’t always the most fun gift to receive post-diagnosis. This year, why not get creative with your gift-giving? Give your friends and loved ones an infinitely more lasting gift: research for a cure.
This year, give your sweetheart the gift of science by donating to Beyond Celiac.
With your support, Beyond Celiac is catalyzing the next wave of celiac disease research. Our organization has made significant progress accelerating research for treatments and a cure thanks to our generous donors! In the last year alone, this is how we put your gifts to work:
- Funded groundbreaking research grants, positioning Beyond Celiac as the premier organization for funding international celiac disease research
- Presented original research to raise awareness in the academic community of the ubiquity of non-GI symptoms
- Hosted a science summit to brainstorm strategies for overcoming barriers to treatments and a cure
- Embarked on a health equity initiative to ensure all patients can access care and are involved in clinical trials
- Recruited for clinical trials to accelerate progress for treatments and a cure
- Published the first-ever benchmark survey for celiac disease in conjunction with Harris Poll about awareness and treatments to establish benchmarks for progress in raising awareness for celiac disease
- Added new surveys to our Go Beyond Celiac registry to collect further information from our community on their lives with celiac disease
(We also have some VERY exciting research grant news on the horizon—stay tuned!)
Wouldn’t a cure be sweet to savor? To Beyond Celiac, a cure means real treatment options so those with celiac disease can live healthy lives and eat without fear. In the future, that means something as simple as eating any chocolate you want, but also traveling anywhere you want, eating with family and friends, and getting relief after years of intense symptoms. It means a life free from the burden of hypervigilance.
We firmly believe that with our strategic approach to targeted research, an effective treatment or cure is possible by 2030. With your support, we can get there. Without your support, it could be decades before anyone invests in celiac disease. Give today and one day soon you won’t have to worry about gluten in those heart-shaped boxes. Now that’s what I call living the sweet life.
Together for a cure,
—Alice Bast
Mediterranean Pinwheels with Canadian Bacon
These Mediterranean pinwheels are tasty and easy to make! They’re also easily customizable; substitute ingredients in and out for an endless variety of tastes. Add ingredients for a fancy cocktail party or keep it simple for a nutritious lunch on the go.
This recipe is courtesy of our friends at Jones Dairy Farm.
Celebrate Valentine’s Day right with this delectable, gluten-free red velvet cake! It’s tender, soft, and sweetened with cream cheese frosting.
This recipe is courtesy of our friends at Gluten-Free Palate.
Noticias sobre investigación
Cow’s milk protein allergy could be the culprit when some children don’t recover on the gluten-free diet
In children on the gluten-free diet who had no symptoms but whose celiac disease blood tests and biopsies showed active celiac disease a cow’s milk protein allergy might be to blame, researchers at the University of Chicago Celiac Disease report in the findings from four case studies.
Voices of Celiac: Max’s Story
“Max’s digestive struggles began when he was a toddler. He vomited often and slept little. At some point, he started self-selecting food, realizing that fruit and the gluten-free pretzels I had bought on a whim never made him sick. He essentially subsided on that diet for months. His once chubby cheeks grew slim and narrow. Just before his third birthday, Max had dropped so much weight that he was back to wearing his one-year-old clothes.”
Ensayos clínicos
PROACTIVE Celiac Study
This is a phase 2 clinical trial to test the safety and effects of the investigational medication PRV-015. In combination with a gluten-free diet, PRV-015 aims to reduce symptoms and intestinal inflammation caused by accidental gluten exposure. No gluten challenge.
Requirements:
• 18-70 years old
• Biopsy-confirmed celiac disease
• On a gluten-free diet for at least the last 12 months
• Still experiencing celiac disease symptoms
Allergic Living Spotlight
Taking Celiac Seriously: Stand Up for Your Needs With These 5 Helpful Tips
The gluten-free diet becoming mainstream was a double-edged sword: popularity does bring options, and to some extent awareness, but the infusion into pop culture has led the diet to completely overshadow celiac disease. The result? Those of us living with celiac disease aren’t being taken seriously. Check out this article for tips on managing a flippant attitude.
News, Events & Updates
Good gut health supports the immune system and generally makes you feel better. Find our top tips for managing the health of your microbiome in this article.
You can donate to Beyond Celiac without spending an extra dime! When you buy eligible items on Amazon Smile, 0.5% of your purchase will be donated to Beyond Celiac at no extra cost to you. Here’s how:
- Visit smile.amazon.com.
- Search for “Beyond Celiac” in the search bar on the bottom right-hand side of your screen.
- Select Beyond Celiac.
- Start shopping!
Raise Money for Beyond Celiac on Facebook!
Happy birth month to all our February-born community members! When your big day rolls around, consider raising money for Beyond Celiac so that we can help fund new research by scientists in the celiac disease field. And a HUGE thank you to everyone who’s created fundraisers for us throughout the years! These fundraisers help make our important work possible.