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Letter from Alice: The Heart of Beyond Celiac is You!
Happy February! Most people associate this month with romantic love, but we want to celebrate a different kind of love: our love for our community!
Beyond Celiac is a 501(c)3 nonprofit organization. As such, we could not exist without the support from the celiac disease and non-celiac gluten-free community. YOU are the heart of this organization.
With your help, we have accomplished amazing things throughout the years. For example, Beyond Celiac earned unprecedented funding from the NIH to develop materials to raise awareness, researched gluten in medications with funding from the FDA and illuminated the symptom of brain fog as a serious concern for our community that was largely overlooked. Together, we have increased the rate of diagnosis from 3% to as high as an estimated 50% in under 20 years; we’ve increased the availability and affordability of safe, gluten-free food on store shelves; increased the number of restaurants trained in gluten-free food handling procedures; educated doctors and pharmacists about celiac disease; distributed thousands of Getting Started guides; and now have set our sights on accelerating research via grants, clinical trial recruitment, the Go Beyond Celiac patient registry and more. These efforts will get us to treatments toward a cure by 2030.
It’s incredible what we can accomplish together, right? It’s even more astounding when I think back to where we first launched this organization in 2003. It was just our director of administration Nancy Ginter and me working from a spare room in my home. It is with your support that we have accomplished this much.
That’s why I so firmly believe in our collective ability to bring a cure or treatment to the community. Look at everything we have accomplished in less than twenty years! Frankly, getting a treatment isn’t a matter of if but when. Just take a look at all the clinical trials in progress on our drug pipeline page.
If you want to be a part of this massive movement, you can donate, learn more about supporting clinical trials, sign up to be a volunteer, or join Go Beyond Celiac and share your experiences with researchers. Other ways to help include starting a Facebook Fundraiser for Beyond Celiac, sharing our social media posts to spread the word, and attending events, such as our Step Beyond Celiac 5Ks and Ayuntamientos. You can also join our Celiac Champions program, a community of our most dedicated donors, who support our work with sustaining monthly gifts.
With your continued support, we WILL beat this disease.
Together for a cure,
Alice Bast
Valentine’s Day Strawberry Chocolate Cups
A sweet treat to make your sweetheart for a gluten-free Valentine’s Day!
Vegetable Spring Rolls with Rice Noodles
The Lunar New Year celebration starts on February 1 and ends February 15 with lantern festivals. Many traditional Asian dishes can be made gluten-free, including spring rolls. Try this recipe as you welcome the year of the tiger!
This February, we’re asking the heart of Beyond Celiac—our community—to help us raise funds for innovative research, including a study into how the brain is damaged by celiac disease and how those changes affect mental health. Your gift supports this and other vital Beyond Celiac grants and programs.
We’ve joined forces with our partner imaware™ to bring you life-impacting health data in the form of celiac screening and monitoring tests. Our goal is to empower those affected by celiac disease to play an active role in detecting and monitoring their disease. Ten (10) lucky winners will be gifted the test of their choice (screening or monitoring).
Noticias sobre investigación
Ask the Science Team: Why Do I Continue to Have Symptoms on the Gluten-Free Diet?
Studies have shown that people with celiac disease on the gluten-free diet continue to have symptoms, elevated antibodies to gluten detected in blood tests, and damage to the nutrient-absorbing lining of the intestine.
Top 5 Beyond Celiac research news articles of 2021
After years of working to accelerate celiac disease science, Beyond Celiac was thrilled to see a burst of new and exciting research published in 2021. We compiled the top 5 most popular research stories of 2021, with concern about the accuracy of negative celiac disease blood tests topping the list.
Ensayos clínicos
PROACTIVE Study
Are you still experiencing celiac disease symptoms despite your best efforts to follow a gluten-free diet?
The PROACTIVE Celiac Study is looking for people between the ages of 18 and 70, who have biopsy-confirmed celiac disease and have been on a gluten-free diet for at least the last 12 months. You will not be asked to ingest gluten in this study. The goal of this phase 2 clinical trial is to test the safety and effects of the investigational medication PRV-015. In combination with a gluten-free diet, PRV-015 aims to reduce symptoms and intestinal inflammation caused by accidental gluten exposure.
Learn More
See if You Qualify
Use referral code: REFBC
Allergic Living Spotlight
Valentine’s Candy Guide 2022: Our Top Picks of Allergy-Friendly Treats
Sourcing the tastiest allergy-friendly sweets for Valentine’s Day shouldn’t be as hard as finding your one true love. Let Allergic Living guide you through the heaps of treats to the best of the allergy-friendly candy and chocolate. From exciting goodies for little ones to sumptuous gifts for your sweetheart, we have a Valentine’s Day sweet to please each and every one of your darlings.
News, Events & Updates
March Town Hall: Manifestations of Untreated Celiac Disease with Stefano Guandalini, MD
Join Beyond Celiac for a Q&A session with renowned celiac disease expert Dr. Guandalini, professor emeritus at the University of Chicago and founder of the University of Chicago Celiac Disease Center. Dr. Guandalini’s clinical and research efforts have greatly influenced the way celiac disease is diagnosed and treated today. His work contributed to the revision of 20-year-old guidelines for diagnosing celiac disease. Dr. Guandalini is also the medical advisor for Beyond Celiac partner and sponsor of this Town Hall, imaware™. Submit your questions ahead of time and stop by on March 15, 2022, 11 AM ET!
Co-founder of ImmunogenX hopes to help others with celiac disease by developing treatments for the disease.
Managing Celiac Disease in the Teenage Years; An Interview with Jack Goldberg
Jack Goldberg shares his story and perspective on getting diagnosed with celiac disease as a teenager, a time when most people are focused on fitting in.
Shop Charitably with Amazon Smile
You can donate to Beyond Celiac without spending an extra dime! When you buy eligible items on Amazon Smile, 0.5% of your purchase will be donated to Beyond Celiac at no extra cost to you. Here’s how:
- Visit smile.amazon.com.
- Search for “Beyond Celiac” in the search bar on the bottom right-hand side of your screen.
- Select Beyond Celiac.
- Start shopping!
Raise Money for Beyond Celiac on Facebook!
Happy birth month to all our February-born community members! When your big day rolls around, consider raising money for Beyond Celiac so that we can help fund new research by scientists in the celiac disease field. And a HUGE thank you to everyone who’s created fundraisers for us throughout the years! These fundraisers help make our important work possible.