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Letter from Alice: Happy Holidays
It’s the holiday season! I hope things are off to a cheery start for you and your family, but I know this can be a hectic time of year for many, from buying gifts for everyone on your list to traveling in winter weather. If you add on top of all that the need to eat gluten-free, the stress can sure pile up!
Imagine if one of those stressors were no longer a worry—imagine if you and your family members didn’t have to think about staying gluten free. You could eat freely at the family potluck, frost cookies with friends, and indulge in sweets without having to read a label. You wouldn’t have to worry about cross-contact making you sick and potentially spending your holidays in the bathroom or in bed.
Together, we could make this dream a reality. With your support, some time in the not-so-distant future, holidays Beyond Celiac will be possible. Beyond Celiac is the leading organization working to accelerate treatments toward a cure by 2030. We’ve funded over two million dollars in research for celiac disease and there are now 15 drugs in development. The race is on to see which one will be approved for patients first.
Here are three ways you can help us accelerate this life-changing work:
- Donate to Our Work By making a tax-deductible donation this holiday season, you make sure that we are able to continue doing this critically important work for the celiac disease community. All gifts given this month will be matched up to $36,000 by generous donors, meaning your impact on research goes twice as far.
- Participate in Research through Go Beyond Celiac Go Beyond Celiac is an online patient registry and app that collects data to accelerate research for celiac disease. Share your experiences to help change the future for those living with this serious autoimmune disease.
- Sign Up for a Clinical Trial If you want a front-row seat to the race for a treatment, why not sign up for a clinical trial? As a person affected by celiac disease, you can play an important role in advancing research by participating in a clinical trial or study.
Don’t wait. Help us make holidays Beyond Celiac a reality!
For the 2022 holiday season, we have a gluten-free holiday guide to help you navigate get-togethers with as little stress as possible. From all of us at Beyond Celiac, we wish you and yours healthy, happy holidays!
Together for a cure
—Alice Bast
Fully Loaded Cheesy Breakfast Casserole
When we say fully loaded, we’re not joking. This gluten-free casserole has all our favorite things: bacon, breakfast sausage, cheese and hash browns. The recipe is courtesy of Jones Dairy Farm and features their certified gluten-free All Natural Roll Sausage and Dry Aged Bacon.
If you’re looking for a recipe to satisfy your chocolate cravings, look no further—this flourless chocolate cake from Chef Oonagh Williams is simple, tasty, and on the smaller size, perfect for those who don’t want a big portion size. Mix and match the fruit sauce and topping to fit your tastes!
Noticias sobre investigación
Genetic tests in at-risk children reveal more than presence or absence of celiac disease genes
Genetic tests can reveal more than a simple “yes” or “no” regarding whether an at-risk child has the genes associated with celiac disease.
Voices of Celiac: Chad’s Story
“My form of celiac disease carries a five-year mortality rate of 60%. Well, I obviously made it past six months and blew past my five-year mark. […] Most of my acquaintances and friends knew me before I got sick or after I started some recovery. I let very few people in my circle when I am sick. I’ve always been that way: never let anyone see you down or less than 110% […] Sometimes you have to accept battles to get where you are going in life. I’m not exactly sure where that is, but if these past years are any guide, then I welcome another year!”
Ensayos clínicos
PROACTIVE Celiac Study
This is a phase 2 clinical trial to test the safety and effects of the investigational medication PRV-015. In combination with a gluten-free diet, PRV-015 aims to reduce symptoms and intestinal inflammation caused by accidental gluten exposure. No gluten challenge.
Requirements:
• 18-70 years old
• Biopsy-confirmed celiac disease
• On a gluten-free diet for at least the last 12 months
• Still experiencing celiac disease symptoms
Allergic Living Spotlight
What’s the Link Between EoE and Celiac Disease?
A large analysis of more than 35 million patients found an intriguing connection between celiac disease and eosinophilic esophagitis (EoE). Out of the 15,000 patients in a database, 2% also had celiac disease. The conditions also have some overlap in symptoms, triggers and causes. Learn more on the Allergic Living website.
News, Events & Updates
You can donate to Beyond Celiac without spending an extra dime! When you buy eligible items on Amazon Smile, 0.5% of your purchase will be donated to Beyond Celiac at no extra cost to you. Here’s how:
- Visit smile.amazon.com.
- Search for “Beyond Celiac” in the search bar on the bottom right-hand side of your screen.
- Select Beyond Celiac.
- Start shopping!
Raise Money for Beyond Celiac on Facebook!
Happy birth month to all our December-born community members! When your big day rolls around, consider raising money for Beyond Celiac so that we can help fund new research by scientists in the celiac disease field. And a HUGE thank you to everyone who’s created fundraisers for us throughout the years! These fundraisers help make our important work possible.