December 2021

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Letter from Alice: The Gift of Health

This holiday season, I’m thinking about the gift of health. I am so thankful that all those years ago, I was finally diagnosed with celiac disease and was able to take back control of my health. However, I’m also looking toward the future. The truth is, despite increases in diagnosis and the wider availability of gluten-free foods, the health of those with celiac disease has been compromised for far too long. This is a progressive disease that can cause long-term health consequences. Beyond Celiac is committed to a vision of a world in which people with celiac disease can live healthy lives to the fullest. Where they can fully heal and live free of fear of food. To make this vision a reality, we are focused on finding real treatments toward a cure by 2030. Because the true gift of health will come from a cure for this serious disease.

Thinking about the future always makes me think of children. I myself have a new grandchild, and with an increased susceptibility to celiac disease, I want to create a celiac-free future for him and everyone else touched by this disease. It is with him and all the other at-risk children in mind that I come to work each morning. And I am proud to say that this year Beyond Celiac has made great strides toward treatments and a cure by taking a 360-degree approach. We’ve recruited hundreds of patients for promising clinical trials. We’ve funded research into screening programs, gluten-related brain damage, and ribonucleic acid (RNA) sequencing. We are funding Established Investigator grants to keep the best and brightest scientists committed to celiac disease research and Early Career Research grants to attract exceptionally promising young investigators to the field. We partnered with Johnson & Johnson to accelerate exciting new science with a combined 1 million dollars in funding. All of this is a part of our commitment to creating a better world for our children.

You can help give the gift of health by funding the research that will make treatments or a cure possible for our children by 2030. This holiday season, Beyond Celiac is raising funds to Forge a Future Beyond Celiac. Real treatments and a cure are needed for everyone living with this serious disease—especially the one in five children not healing on the diet. Beyond Celiac firmly believes that with our strategic approach to research, a cure is possible by 2030. We have crafted our science plan to change the future for the 3.2 million Americans living with this serious autoimmune disorder.

Please consider giving today to Beyond Celiac to help forge a future Beyond Celiac—for our community, for my grandchild, and for you.

Together for a cure,

Alice

Thank You for Attending Our Celiac Disease Mini-Conference!

Thank you to everyone who joined us virtually for Celiac Disease, Hidden in Plain Sight: a Beyond Celiac Mini-Conference. Over the course of three sessions, we discussed why and how many patients have been “left behind” in the celiac disease world due to missed diagnosis or challenges to diagnosis. The sessions were:

• Missed diagnosis due to neurological manifestations
• Missed diagnosis due to patient demographics
• The future of diagnosis methods

Watch a Recording of the Mini-Conference

Noticias sobre investigación

How well do urine tests measure gluten in a gluten-free diet?
The reliability of urine tests to determine how much gluten might be getting into the gluten-free diet is questioned in a new study. Meanwhile other scientists defend the accuracy of the tests based on the results of previous research.