Some times in our lives are busier than others, but August and September seem to be reliably busy. Students prepare to go back to school, young adults move in with new roommates, and parents re-adjust to life with kids in school. Even for those without children, the last bit of summer often marks a shift in pace as vacations end and fall routines start to take hold. Through it all, Beyond Celiac has resources to make all these transitions easier.
News & Updates
Event: Más allá de la celiaquía
We have our sights set on a cure for celiac disease, and every step you take helps get us closer to our goal! Proceeds raised from our Step Beyond Celiac 5Ks support our initiatives to provide care for patients in the present and a cure in the future.
- Greater Boston: Join us for National Celiac Awareness Day on Sunday, September 13, from 9 AM to noon, at Middlesex Community College
- Greater Philadelphia: Join us on Sunday, October 4, from 9 AM to noon, at Norristown Farm Park
- Virtual: Complete a 5K anywhere in the world, anytime this fall
Event: Pickleball Tournament
This Los Angeles-based event seeks to raise awareness of celiac disease, while also raising critical funds. We hope you will join us in support of this important cause!
Whether you’re a pickleball pro or just stepping into the gluten-free kitchen, our tournament is designed to include all skill levels.
Resource: Could You Have Celiac Disease? Video
A video to raise awareness of how confusing celiac disease symptoms can be.
Content: Celi-Yap
Celi-Yap is a series by our interns that feature candid conversations between two young adults with celiac disease about celiac disease and all the ways it affects life, for better or for worse. Tune in via our YouTube channel.
Caregiver’s Corner
With the start of a new school year approaching, you can help prepare staff at your child’s school to care for them in case of illness by giving our Celiac Disease 101 for School Nurses to onsite healthcare staff.
Caregiver’s Corner is proudly sponsored by Jones Dairy Farm, maker of certified GF, all-natural sausage & naturally smoked meats.
Noticias sobre investigación
Beyond Celiac Coalition and FDA Discuss Pediatric Clinical Trial Barriers for Celiac Disease
The FDA, patients, and the Beyond Celiac Coalition, a group of stakeholders working to address clinical trial barriers, met to discuss patient-centric approaches to developing pediatric clinical trials for celiac disease.
Research Opportunities
DAISY Study
*Intended for a US audience*
Tired of dealing with celiac? We are seeking volunteers living with celiac disease to join the DAISY clinical research study to help us further develop our knowledge of celiac disease and discover a potential new medication option.
By joining the DAISY Study, you may receive:
- study-required investigational medication at no cost
- study-related care at no cost
- reimbursement for study-related travel expenses.
Health insurance is not required to take part. Are you eligible? Learn More
GLUTECH
Have you been recently diagnosed with celiac disease? You could help researchers learn if gluten detection technology improves intestinal healing and quality of life.
Eligibility: 18–75 years old, biopsy-diagnosed celiac disease, less than 4 months on a gluten-free diet, and willing to come to one of four sites: Boston, Chicago, Nashville, or New York City/ Additional criteria apply.
Participants will receive an iPad at the beginning of the trial and can also earn up to an additional $565 for participation.
T1D Screening Survey
Some healthcare providers have started to screen for T1D as part of regular follow-up care for celiac disease. This survey is designed to better understand what screening practices are currently being used and what patients and families want.
Healthcare Satisfaction Survey
Dr. Rikki Roscoe, Assistant Professor at the University of Kansas, is conducting a grant-funded research study to better understand individuals’ experiences in obtaining a celiac disease diagnosis and their satisfaction with the health care they have received since their diagnosis. Participation is voluntary and involves completing a 20–25-minute anonymous online survey. Learn more about the study and participate.
Back to School Support
Sending your child to school with a new teacher and new classmates can be stressful when they have an autoimmune disease like celiac. Get ahead of the curve by sharing our free Protecting Students with Celiac Disease resource with their teacher(s) before the school year starts—there’s even a section where you can add a personalized message! For more resources, check out our Info for Students & Schools Hub.
Back-to-school season is busy enough—snacking shouldn’t be! Certified gluten-free Crunchmaster Original Crisps Multi-Pack make packing lunches and planning after-school snacks simple with convenient, individually portioned packs that are easy to grab and go. Whether it’s between classes, after practice, or on the way home, Crunchmaster makes it easy to keep a delicious snack within reach that the whole family can enjoy, wherever the day takes you. Find products near you.
The Back to School section is proudly sponsored by Crunchmaster.
Recetas sin gluten
Cold Corn Chowder
Stay cool this summer by enjoying a New England, vegetarian classic: corn chowder. Fresh corn straight off the cob sings as the hero ingredient amid potatoes, cream, onion and herbs. It is wonderful warm, but with the heat wave happening we recommend enjoying it cold!
Mascarpone Strawberry Cream
This is a very soft, very rich dessert, no baking required! Just mix the ingredients and refrigerate. Try using sweet raspberries, peaches, nectarines or whatever fruit is in season. Tasty on its own or with shortbread.
Trivia Question of the Month
Question
Is couscous gluten-free?
Answer
No, couscous is not gluten-free. It’s made from semolina, which is a type of wheat. For a gluten-free substitution, try quinoa.
Voices of Celiac: Sam’s Story
“[After diagnosis,] everything was a challenge. I was 19 and had to relearn how to live. My mental health was as much of an issue as my gut health because shortly after the sinus surgery, a few people who I considered close to me passed away. I wasn’t only in college while all of this was happening; I was grieving the loss of loved ones and also a loss of myself.
If I had done more research, and gone to a doctor right away, I would have been much better off. I knew I had celiac disease, but I didn’t want to believe it. I didn’t want to change my life.”
Read Sam’s Story
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