Describe your life prior to diagnosis:
I was once a head legal secretary for a prosecuting attorney in Indiana. I was an exercise enthusiast who preferred strength training, yoga, and swimming. At one point, I worked as an investment banker and sold aerial photography.
I have two daughters who have been more than supportive and have seen my health decline. I eventually lost my apartment, my truck, and my job.
How did you come to know (or suspect) that you have celiac disease?
As my health declined, I relocated to eastern Kentucky; I had lost over 60 pounds and was receiving IVs at the cancer care clinic there. I was planning my funeral.
Then, my mother set up an appointment for me with my step-father’s internist. After a biopsy, I was diagnosed with celiac disease.
If you were diagnosed, who made the diagnosis?
Dr. Mohammad Jaweed of Corbin, Kentucky. He saved my life but lost his due to COVID-19. I will always be humbled and thankful for this internist. My heart breaks for his family.
How long did it take for you to get diagnosed since your first symptoms and what (if any) challenges did you face along the way?
18 years.
Do you believe anything could have sped up your diagnosis? If so, please explain:
Yes, more awareness that celiac disease is a real disease. Medical professionals, along with the public, need to know the damage that comes from this horrific disease.
Is there anything else you’d like to add to your story?
I have recently gone to a local dentist who used products that contain gluten. I am now losing weight again, and I’m dealing with vomiting, diarrhea, and loss of focus.
But my story is far from over. I have authored one book and am working on my second.
