I was diagnosed with celiac disease at eight years old after results from a regular doctor appointment revealed that I was not growing enough (with many doctor’s appointments following). At the time, I was perplexed that something could be harming my body without showing any noticeable signs. In hindsight, I feel very lucky to have been diagnosed at a young age, but at the time, felt lost navigating my diagnosis and a gluten-free diet. Silent celiac disease is difficult for many adults to understand, and it was a challenging transition for my family and me. Since then, I have seen the celiac and gluten-free world expand, and I have explored gluten-free food in eight different countries and cities all over America. I have learned how to advocate for myself, how to read labels, and to always carry extra snacks.
Building Community
I have always loved connecting with celiac disease and gluten-free peers, and helping newly diagnosed people adapt to the diet. When I went to college, I met many peers with celiac disease, and I organized gatherings to have GF food and talk about our experiences. I also arranged meetings with dining services to advocate for better labeling and GF options in dining halls. I hope to continue to build my gluten-free community and advocate for wider understanding of the needs of those with celiac disease.
What’s Next?
I currently work in medical research in Philadelphia and am an aspiring mental health professional. I’m interested in the intersection of mental health and physical health. I love talking about the mental health implications of celiac disease and other autoimmune disorders. I also love to dance, cook, and document my adventures on my GF food account, @galsagainstgluten!
