Navigating the World After Diagnosis
When my daughters were diagnosed with celiac disease within a year of each other, our entire family was thrown into a world we knew very little about. Even more alarming, beyond our own naïveté, was the misinformation and lack of understanding we encountered as we navigated our new reality.
Holiday dinners, birthday parties, field trips, Spring Break vacations, sleepovers at friends’ homes, sports tournaments, football tailgates.. all of these once “normal” teenage experiences suddenly felt overwhelmingly challenging, both for myself and my celiac daughters. And so, I did what we as moms do best, and went to work to advocate for my kids in the hopes of creating a world where their lives could feel “normal” again.
Improving Lives for Patients and Their Families
“Do the best you can until you know better. Then when you know better, do better.”
—Maya Angelou
As a former educator, my passion for sharing knowledge and expanding understanding runs deep. I truly believe that many of the challenges those with celiac disease face can be eliminated through education and empathy. I am committed to dedicating my time and energy to helping families navigate this disease with success while educating the general population to create allies in our community.
