Long-Term Follow-Up of Patients with Celiac Disease | BeyondCeliac.org
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Long-Term Follow-Up of Patients with Celiac Disease


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Survey of Canadian gastroenterologists confirms need for consensus-based guidelines in care.


For patients with celiac disease, the medical team’s role doesn’t end at diagnosis. Celiacs need active follow-up, including annual medical visits, dietary review and possible routine testing, researchers noted. But a survey of Canadian gastroenterologists found follow-up practices can vary.

According to the survey, while 76% of respondents performed some level of follow-up care, 15% of adult gastroenterologists were not familiar with any celiac disease practice guideline.

More importantly, “the majority of gastroenterologists who did not routinely provide follow-up expected care to be provided by the patient's primary physician (86%),” researchers noted. The finding stresses the importance of education among the primary care community, a subject matter that American gastroenterologists also emphasize.

In light of the survey, researchers concluded: “The diverse practices reported underscore the need to develop consensus-based guidelines for long-term care of these patients."

Based upon the 2004 NIH Consensus Development Conference on Celiac Disease, the following six elements are key in the management of celiac disease :

  • Consultation with a skilled dietitian
  • Education about the disease
  • Lifelong adherence to a gluten-free diet
  • Identification and treatment of nutritional deficiencies
  • Access to an advocacy group
  • Continuous long-term follow-up by a multidisciplinary team




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