Beyond Celiac to Present Innovative Patient Engagement Model at Stanford Medicine X
PHILADELPHIA (June 8, 2016) – Beyond Celiac today announced that the organization has been selected to present at Stanford Medicine X 2016 . Each year Stanford Medicine X brings together the most innovative and engaging minds in academia and industry to exchange bold new ideas about the future of medicine and the role technology plays in improving health. The annual gathering of leading clinicians, researchers and educators, being held from September 16 – 18, is a catalyst for healthcare innovation and patient engagement.
The Beyond Celiac workshop, “Applying Behavior Change Models to Educate Genetically At-Risk Celiac Disease Patients,” will highlight the organization’s development and utilization of an in-depth patient engagement model to help advance celiac disease diagnosis rates. Panel participants will discuss how Beyond Celiac is leveraging this model to educate and empower individuals living with celiac disease to encourage their biological relatives, who are most at-risk, to be tested.
The workshop represents the Everyone Included ™ principles of mutual respect and inclusivity, which Medicine X is based on. Everyone Included™ creates a culture of health in which everyone is trusted and respected for the expertise they bring, where openness and experimentation is the norm, people have personal ownership of health, individual stories have global impact, and the patient voice and choice is a part of all stakeholder decisions.
Aimee Corso , a nationally-respected consultant on improving stakeholder communications within the healthcare system and board member of Beyond Celiac, will moderate the conversation. The workshop will feature a panel of experts on celiac disease, clinical research, media production and patient engagement:
Based on the insights pulled from its research and patient engagement efforts, Beyond Celiac developed Seriously, Celiac Disease to inspire individuals with celiac disease to speak with their biological relatives about getting tested. Elements of the campaign are grounded in health behavior change models and include: a PSA video, discussion guides and a media campaign to promote the need for higher diagnosis rates. Seriously, Celiac Disease has reached more than 642,000 people through online chats, webinars, podcasts, video views and downloads of materials since its launch in April 2015. After speaking with diagnosed family members, 95% of untested relatives surveyed said they are likely to ask their doctor for a celiac disease blood test.
“Since our start 13 years ago, Beyond Celiac has been committed to conducting, supporting and advocating for research. We’ve developed essential community support programs and advanced celiac disease treatments,” said Bast, who suffered from the debilitating symptoms of celiac disease for nearly a decade before her diagnosis in 1994. “Seriously, Celiac Disease is the first and only awareness campaign dedicated exclusively to enabling celiac disease patients to encourage family members to get tested. It is through research and innovation that we are able to craft new ways of reaching the at-risk celiac disease community, and we are thrilled that we will be able to tell the story at the prestigious Stanford Medicine X conference.”
To learn more about Seriously, Celiac Disease, visit www.SeriouslyCeliac.org.
About Beyond Celiac
Beyond Celiac, formerly known as the National Foundation for Celiac Awareness, is a leading international advocacy organization committed to improving awareness and understanding of celiac disease as a serious genetic autoimmune disease, accelerating innovation to support those with celiac disease to live life to the fullest, and forging pathways to a cure. We aim to inspire hope, build a strong community and serve as a trusted resource on celiac disease. For more information, please visit www.beyondceliac.org.
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