HEALTH & WELLNESS
Allergic Living Sneak Peek
From the Archives
NEWS & UPDATES
CHAT WITH NFCA:
NFCA President and CEO
Be a Part of a New NFCA Initiative to Drive Change for People with Celiac Disease and Gluten Sensitivity
I enjoy sharing things on social media, but I consider myself more of a silent observer. I read comments from the National Foundation for Celiac Awareness (NFCA) community and while I don’t always jump into the conversation, I take these comments, mull them over, and refer back to them as the team works on various projects to make living with celiac disease or non-celiac gluten sensitivity (‘gluten sensitivity’) easier. Having been diagnosed with celiac disease for over 20 years myself, I find it fascinating to learn what makes you tick, what your needs are and how you feel about your prescription of a lifelong gluten-free diet. Your opinions have always mattered in a big way – and your role in moving the field of celiac disease forward is about to get even larger .
Everything we do at NFCA is done with you in mind. Since the organization’s founding in 2003, NFCA has positioned itself as a patient-centered organization. We engage with you each and every day online and we rely on your feedback to help shape our resources, programs, advocacy efforts and evolving research agenda. Because we greatly value your input and opinions, we are formalizing your role in driving NFCA activities. That said, I am pleased to announce the inception of NFCA’s newest group of advisors: the Patient Advisory Council.
We are actively recruiting people like you to join our Patient Advisory Council. Members of this volunteer council will help the NFCA team deliver the resources that the community needs most in a way that will be the most helpful and accessible. We’re looking for a wide range of men and women – from adolescents to the newly diagnosed to gluten-free diet veterans and everything in between. Council members will play a key role in maintaining NFCA’s patient-centered activities and initiatives and will have the unique opportunity to cultivate leadership skills, gain new insights, and extend their own personal networks while helping to shape the celiac disease field. In other words, this is your chance to actively make a difference and pursue solutions to the issues that affect you and others like you on a daily basis.
I encourage you to read more about the 10 available positions within the Patient Advisory Council and then submit your application if you feel it is a good fit for you and your skills (or pass it along to a friend who may be interested). We’ve made huge progress in the 10 years since NFCA’s founding. As we close out our first decade of restoring health and reclaiming lives, we need you to help us move forward in the next chapter to have the biggest impact imaginable.
Are you ready to shift the world of gluten-related disorders? Join us on our mission to drive diagnosis and help people like you eat without fear and live your life to the fullest. View the Patient Advisory Council Member volunteer description and follow the steps listed to be considered for this inaugural group .
To our GREAT health,