The Beyond Celiac eNewsletter
March 2019
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Note from Alice: Our Plan for Creating Pathways to Cure Celiac Disease
Dear Beyond Celiac Community,
I am thrilled to announce the unveiling of the Beyond Celiac Science Plan. Our Chief Scientific Officer, Marie Robert, MD, along with our new Scientific Advisory Council, have created this strategic plan to create pathways to treatments and cure for celiac disease. Through this plan, Beyond Celiac is employing a number of strategies to attract, enable and increase the pool of outstanding scientists to the celiac disease field, as well as to expand our registry program, Go Beyond Celiac .
We’ve already kick-started the Science Plan with our very first research grant, The Society for the Study of Celiac Disease – Beyond Celiac Early Career Research Award, which was awarded last month. We created the grant and partnered with the Society for the Study of Celiac Disease to attract exceptionally promising early career academic investigators to the field of celiac disease research. The winner of the award, Dr. Marisa Gallant Stahl of Children’s Hospital Colorado, will use the grant as part of an ongoing study to follow asymptomatic children who have the antibodies to celiac disease to determine the potential benefits and harms of treating them with the gluten-free diet.
And we’re not stopping there! We are currently accepting applications for two more research grants for scientists more established in their fields.
We are so excited to be accelerating research directly in a field that is woefully underfunded. The more research, the better the understanding of this and other autoimmune diseases, and the faster the track to real treatments and a cure for this serious autoimmune disease. We’re working hard for everyone suffering with this disease—those not healing, those with refractory celiac disease, those who want to eat without fear and just feel normal, those who have suffered miscarriages and fertility issues related to celiac disease and everyone recently diagnosed that may feel hopeless. We’re funding research and making things happen, but we can do so even faster with help from YOU. So please consider donating to Beyond Celiac research efforts today for a future Beyond Celiac.
We’d also love to hear YOUR THOUGHTS on our science plan and research grants. Join us for upcoming discussions and Facebook Live videos on the topics on our Facebook page.
To Living Life Beyond Celiac,
Alice
Gluten-Free Cooking with Oonagh
Gluten-Free Cucumber, Smoked Salmon and Sweet Mustard Dill Sauce
An easy to make, yet elegant gluten-free appetizer.
Gluten-Free Date and Walnut Irish Soda Bread
A delicious recipe for gluten-free Irish soda bread featuring dates and walnuts.
About Chef Oonagh Williams
Chef Oonagh Williams holds a culinary arts degree and spends her time cooking, writing, speaking, and educating the public on gluten-free and allergy-free diets. She herself has celiac disease along with other food allergies. When not writing or speaking nationally, she teaches cooking classes, hosts dinner parties, and offers one-on-one help.
Buy herDelicious Gluten-Free Cooking e-book;
like her Facebook page, Gluten-Free Cooking with Oonagh, where she posts recipes, links to her appearances, and gluten-free products she’s discovered; and connect with her for help in following a food allergy diet.
Why Does Someone Get Celiac Disease?
Another virus has been added to the list of common viral infections suspected as possible reasons celiac disease develops, according to a new study.
Upending Some Beliefs About Celiac Disease
Some beliefs about celiac disease have been “upended” by increasing scientific research according to a broad review of the condition in the latest edition of the journal Gastroenterology Clinics.
Help Build a Brighter Future for Those with Celiac Disease
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If you have been diagnosed with celiac disease and have been on a gluten-free diet, but wished there were more you could do for yourself and others, consider participating in a clinical research study. Your participation helps advance scientific knowledge and the development of new treatments for celiac disease.
Allergic Living:How Do They Do It? Families Juggle Celiac Disease
By Lisa Fitterman
Meet three families who juggle celiac disease, food allergies and sometimes more in one household.
Photo credit: Allergic Living/deSilva family
Step Beyond Celiac Philly 5K Registration Now Open!
Join us for our inaugural Step Beyond Celiac Philly 5K at the Philadelphia Zoo on June 9! The course will take participants throughout the zoo, a truly unique experience. Step Beyond Celiac 5Ks raise funds to support Beyond Celiac research efforts and are a fun time for the entire family. REGISTER NOW
The Perfect Match Campaign: THANK YOU!
Last month we called on our community to help us raise $20,000 for celiac disease research… and you did it ! Thank you so much to everyone who donated, you’re a part of celiac disease history as your gifts (and the match we received because of them) are going to help fund new research grants to help propel celiac disease science forward!
Start a Facebook Fundraiser for Beyond Celiac
Happy birthmonth to all our March-born followers! When your big day rolls around, consider “donating” it to Beyond Celiac so that we can help fund new research scientists in the celiac disease field! START YOUR FACEBOOK FUNDRAISER
What’s Hot
- Go Beyond Celiac: join today to help advance celiac disease research.
- Getting Started Gluten-Free Store: our favorite gluten-free foods and kitchen essentials from Amazon.com.
- N.J. college violated Americans With Disabilities Act by not accommodating student with celiac disease: read the article on The Takeout.
