Celiac Awareness Month was so full of exciting new celiac research and education that we’re overflowing with more into June. We’ve got new articles, new studies, and new opportunities to chase down treatments leading to a cure for celiac disease!
In May, our team showcased that commitment by presenting two peer-reviewed abstracts at prestigious healthcare conferences and hosting the first-ever Beyond Celiac Coalition joint meeting with the FDA. In the world of medical research, these are powerful opportunities to convey the celiac community’s most pressing needs directly to influential researchers and leaders.
Here is more information on each:
And that’s still not all! In addition to our research and advocacy efforts in the past month, we’ve also:
Plus, thanks to our partnership with the American Gastroenterological Association, we authored four patient-friendly articles on new AGA research which will be published later this month.
This month, we also have an incredible opportunity to accelerate toward treatment and a cure, thanks to a community member inspired by our scientific momentum. Every dollar donated during June will be tripled, up to $15,000. For a life where we can eat without fear, please join us and seize this opportunity!
Beyond Celiac was born from the need to improve the quality of life for our community by funding and publishing more research and are sparked by scientific curiosity about celiac disease. With our talented Science Team and network of researchers, we are delivering and funding more celiac-related research than ever before. And we have you to thank for all of it.
You have been the driving force. For as long as we’ve been committed to pursuing increased celiac diagnoses and advancing research for new treatments and a cure, we have been supported by people like you who also believe in a world beyond celiac disease.
Summer is a fun and busy time of year. It also presents its own food challenges for people with celiac disease. Let’s use this first month of summer to accelerate our scientific momentum. Will you join me by donating today?
Together for a cure,
Alice, CEO
Rooted in science from the start, twenty years ago, Beyond Celiac educated thousands of medical professionals, increasing celiac diagnosis rates from 3% to nearly 50%. Today, we drive more research activities than ever before, from organizing patient-led meetings with the FDA to address challenges in clinical trials to investing $3 million to date in research aimed at identifying the cause and effects of celiac disease. All of our work ultimately drives progress toward treatments for celiac disease.
Right now, with your help, we are making strides toward a treatment beyond the gluten-free diet with 8 current research projects. During June, we will leap three steps for every dollar raised toward our $15,000 goal, thanks to a dedicated celiac community member’s gift.
Let’s seize this opportunity! Every dollar fuels the vital research that will bring us a cure.
Quinoa and Fruit Salad with Poppy Seed Dressing
With fresh fruits coming into season, now is the time for this salad to shine. This is great as a side dish with any grilled meat or fish, or on its own. You can even prepare the quinoa with dressing the day before, but be sure to only add the fruit a short while before serving.
This gluten-free black bean burger is perfect for any vegetarians with celiac, or folks looking to incorporate more vegetables into their diet. Try making it for the next summer barbecue, and customize it with whichever toppings you prefer.
This recipe was provided courtesy of our friends at the Gluten-Free Palate.
QUESTION: What percent of parents with a child under 18 mistakenly believe that it is fine for a child with celiac disease to eat food served at birthday parties, snacks after their sports team game, and other special occasion situations even though it is not
gluten-free because it’s not a daily occurrence.
ANSWER: 32%. Note that no one with celiac should ever eat gluten, regardless of the severity of their symptoms, nor the special occasion.
This data comes from the 2024 Harris Poll on behalf of Beyond Celiac. To learn more, please visit our Harris Poll page, where you can get the full report.
When children with celiac disease become adults, follow-up care is often neglected
Children diagnosed with celiac disease often neglect follow-up as they reach adulthood, study shows.
New results from clinical trial shows continued progress for a drug to treat celiac disease
Increased doses of a drug being studied for the treatment of celiac disease tempered the response to gluten in celiac disease patients and remained as safe and well tolerated as lower doses.
Final step in diagnosing celiac disease often doesn’t occur even when blood tests indicate the need
Overall, about 30 percent of people who have had a positive blood test for celiac disease don’t go on to get a confirming endoscopy and biopsy, Beyond Celiac research presented at DDW found.
Read more research news on our Research News Feed
This survey intends to provide greater clarity on the experiences that people with celiac disease have when exposed to gluten, including the top symptoms with a negative impact and how symptoms and gluten exposure negatively impact quality of life.
If you’re signed up for Go Beyond Celiac, we invite you to log in and complete this survey. If you haven’t already joined, please become a member of Go Beyond Celiac and start sharing your story today.
Learn more about Go Beyond Celiac
“I had a senior dog and I knew I wanted another dog, and I started to seriously think a gluten detection service dog may be an option. I couldn’t afford a fully-trained one, but an owner-trained one was an option. COVID gave me the time at home to start the process and I was very fortunate to get a puppy. I worked with a trainer over Zoom who taught me what to do. Suki, my gluten detection dog, now checks all my food, medicine, and personal care products for gluten. She travels with me everywhere, and I am so thankful to have her.”
The Craft Brewmasters Who Are Getting Gluten-Free Beer Right
In the past 10 to 15 years, the walk-in coolers at grocery and liquor stores across North America have gradually added a few dozen gluten-free options, ranging from European imports such as Schnitzer Brau and Green’s to niche products like New Grist, and from big beer labels like Anheuser-Busch’s Redbridge to “we-only-make-one-beer” operations such as Bard’s Tale.
Learn more about these revolutionary brewmasters bringing beer to the gluten-free community.
Watch: May Town Hall, Managing the Psychosocial Burden of Celiac Disease
Many with celiac disease often report feeling isolated, awkward, and disheartened as they navigate the world on a gluten-free diet. In this Town Hall celebrating both Celiac Awareness Month and Mental Health Awareness Month, Dr. Anava Wren discusses her research on strategies to combat the social and psychological impacts of celiac disease.
Evening Beyond Celiac is our annual gala, taking place each June. This year we will be honoring The Snider Foundation, TODAY’s Dylan Dreyer and Dr. Dan Leffler, for their contributions to the celiac community. We look forward to welcoming all guests to Philadelphia on June 13th, for a wonderful night!
Raise Money for Beyond Celiac on Facebook!
Happy birth month to all our June-born community members! When your big day rolls around, consider raising money for Beyond Celiac so that we can help fund new research by scientists in the celiac disease field. And a HUGE thank you to everyone who’s created fundraisers for us throughout the years! These fundraisers help make our important work possible.
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