HEALTH & WELLNESS
Allergic Living Sneak Peek
NEWS & UPDATES
CHAT WITH NFCA:
NFCA President & CEO
Saying “Thank You”
The National Foundation for Celiac Awareness (NFCA) has just launched the Share the Love campaign! I am excited to participate in this activity geared towards thanking those who have helped us through our diagnosis of celiac disease or non-celiac gluten sensitivity (‘gluten sensitivity’). You’ll read more about this fun NFCA initiative in the article below.
I’ll go first! I am taking this opportunity to thank just one of the many people who have helped me through my own celiac disease diagnosis and through the process of starting NFCA. After visiting countless doctors, I finally received my diagnosis of celiac disease in 1994. Shortly after, the gastroenterologist who diagnosed me retired from his practice and I began to see Dr. Anthony J. DiMarino, currently the Director of the Celiac Center at Jefferson University Hospital in Philadelphia.
Before being diagnosed with celiac disease, I suffered through multiple miscarriages. Dr. DiMarino and I suspected my experience with miscarriages were directly linked to undiagnosed celiac disease. Together, we poured over European research which confirmed our suspicion and started us on the path to publish a paper on reproductive health and celiac disease so we could help others who were struggling like I was. Words can’t describe how grateful I was to meet a doctor I could trust. Dr. DiMarino always listened to me and gave me hope that things could be different for those of us living with celiac disease. This fueled my desire to start NFCA even more; I knew I had to raise awareness of this autoimmune disease and help others like me find the help they needed, too.
And the rest, as they say, is history.
Here is a photo of Dr. DiMarino and me at NFCA’s 10th Anniversary Celebration in October 2013. Thank you, Dr. DiMarino, for taking me seriously and for helping me on my quest to understand the many implications and complications of undiagnosed celiac disease so we can spread the message to others.
Who do you want to thank? Learn more about the Share the Love initiative below and tell us your story today!
To our GREAT health,
Warming Winter Recipes
I know February is usually a time for Super Bowl or Valentine’s Day themed recipes, but with the frigid temperatures and snow many of us are experiencing, it’s time for warming comfort food.
ORANGE RAISIN OAT LACE COOKIES
About Chef Oonagh Williams
British-born award-winning chef Oonagh Williams has a culinary arts degree and was trained in London and Switzerland. Based in New Hampshire, Chef Oonagh began adapting meals to gluten-free versions after her son was diagnosed with gluten and lactose intolerance two years ago. To learn more, visit Chef Oonagh’s website at www.RoyalTemptations.com or ‘Like’ her at Gluten Free Cooking with Oonagh on Facebook.
Preparing for Valentine’s Day Celebrations in the Classroom
Get your gluten-free cooking and baking questions answered by the expert! Have a question for Silvana? E-mail Alicia at [email protected] and your question could be answered in a future NFCA newsletter.
As a parent of a child living with celiac disease or non-celiac gluten sensitivity (‘gluten sensitivity’), you know classroom activities can pose unique challenges in keeping your child gluten-free. With Valentine’s Day just around the corner, you can be sure there will be classroom celebrations – and that means gluten-full foods are likely to make an appearance.
Get ahead of the game this year and try one of these gluten-free recipes, perfect for sharing with your little Valentines and their classmates, too!
Red Velvet Black & White Cookies
Valentine’s Day Doughnuts
Buttered Parmesan Popcorn
Thin Minty Cookies
About Silvana Nardone
NFCA supports celiac disease research and we’ve made it part of our mission to help move this important work forward. Clinical research studies are necessary to bring pharmaceutical drugs to market. In fact, every drug approved by the U.S. Food and Drug Administration (FDA) has gone through the clinical trial process. While there is no pharmaceutical treatment currently available for celiac disease, some of these treatments potentially are on the horizon. And, the only way to bring them to fruition is though clinical research studies.
To help explain the importance of patient participation in celiac disease research studies, we talked to renowned physician and researcher Daniel A. Leffler, MD, MS, Director of Clinical Research at the Celiac Center at BIDMC and NFCA Scientific/Medical Advisory Council Member. Here are his top five reasons to participate in research:
Want to learn more about how you can get involved in celiac disease research? Sign up for NFCA’s Research Opt-In. You’ll receive periodic email updates on opportunities to be a part of the expanding world of celiac disease research.
Think back to your diagnosis of celiac disease or gluten sensitivity. Who was there for you every step of the way? Who always makes an effort to understand your gluten-free needs? Is there someone you’d like to thank in a big way?
Now is your chance. This February, NFCA wants you to Share the Love . We know that a lack of understanding can sometimes make it frustrating to live the gluten-free lifestyle, but we want to take the time to remind everyone of the people who really just get it.
All you have to do to Share the Love is submit a photo or a short story thanking the person who has been there for you on your gluten-free journey. No matter who your special someone is – whether it’s a parent, cousin, sibling, doctor, a gluten-free blogger, whoever – we want to hear about them!
Diet Secrets of Gluten-Free Athletes
Olympic swimming champ Dana Vollmer and other top competitors are powered to win – without gluten.
For swimmer Dana Vollmer, it was a long-awaited moment: representing the United States in her first Olympic 100-meter butterfly event.
From the age of 12 Vollmer had worked towards this place on the starting platform, enduring serious injuries and illness, and persevering despite a disappointing showing in the 2008 Olympic trials, which kept her from performing in Beijing. After taking time off – and being diagnosed with gluten intolerance and an egg allergy – Vollmer seemed to be on a comeback roll, winning a gold medal for the 100-meter butterfly in the 2011 World Championships.
But this was the much-hyped 2012 London Olympic Games. Could Vollmer, a 24-year-old with a history of heart disease, who subsisted on a diet free of gluten and eggs, perform to Olympic standards?
Out & About: NFCA’s GREAT Kitchens Team Raises Awareness of Gluten-Free Needs on College Campuses
Maintaining a gluten-free diet can be difficult for anyone, but college students face unique challenges. Not only are most living away from home for the first time, but they are also learning how to get around on campus while juggling a social life and their studies. Low on time and, oftentimes, cooking equipment, college students can often fight an uphill battle to stay gluten-free on campus.
But, it doesn’t have to be this way.
With some changes to processes, pre-planning and education, foodservice departments on college campuses can work hand in hand with students to ensure they have safe gluten-free options for every meal. NFCA works hard to educate schools on proper gluten-free food preparation through GREAT Schools, Colleges and Camps, an adaptation of the popular GREAT Kitchens training program used to educate restaurants that serve (or want to serve) gluten-free options.
In mid-January, NFCA’s Director of Gluten-Free Industry Initiatives Beckee Moreland and Director of Foodservice Jerry Norris traveled to Virginia Polytechnic Institute and State University, more commonly known as Virginia Tech, to educate foodservice professionals on gluten-free needs. There, they teamed up with staff from the Food Allergy Research & Education (FARE) group to cover all aspects of special diets. This event kicked off the FARE College Food Allergy Program which, according to the organization, “will focus on convening experts and stakeholders to create comprehensive guidelines and develop resources such as training for dining services and resident advisors, educational materials for existing and prospective students and their families, and guides for creating campus social groups.” Key members from several colleges and universities from around the country attended this kick-off event, as well as other foodservice industry professionals. The summit was sponsored by U.S. Foods and hosted along with Premier, Inc., a healthcare performance improvement company that contracts for discounted food and foodservice products.
“More and more colleges and universities are recognizing just how important gluten-free options are to college students living with celiac disease or gluten sensitivity,” said Beckee. “What’s even more exciting than this increased interest is their recognition of the need for education to know how to do it right.”
Jerry was equally pleased with the trip to Virginia Tech. “We’re finding that many schools are willing to accommodate special dietary needs,” he added. “They just need some help in understanding what those specific needs are.”
NFCA is working to help schools do just that. If your (or your child’s) college or university needs some help in understanding safe gluten-free food preparation, consider referring them to the GREAT Schools, Colleges and Camps program. The NFCA team is excited to jump in and help your school be able to best meet your gluten-free needs.
Free NFCA Webinar: FODMAPs, Gluten Sensitivity & IBS