As the carefree summer days make way for the exciting back-to-school hustle, we understand the stress this transition can bring, especially for those coping with food restrictions. However, fear not—Beyond Celiac is here to help!
While we continue to make strides toward a breakthrough treatment for celiac disease, we are also fully aware of the daily challenges faced by our community. A treatment is coming, but you deserve to eat and live without fear in the meantime, too. I am proud to announce the launch of our brand new Resource Library, including an initial batch of ten new resources for those of us on the gluten-free diet.
The Resource Library is your hub for tools related to living with celiac disease. Here, you can explore a variety of content types, including informative PDFs, engaging articles, insightful videos, and enriching audio resources. Delve into topics such as the gluten-free diet, dining out, managing school years, navigating psychosocial challenges, and much more. Our library includes some of our tried-and-true classics and exciting new resources, such as:
And that’s just the beginning! Whether you were diagnosed last week or decades ago, I encourage you to explore this growing collection of professional-grade resources. It’s one thing to know the ins and outs of celiac disease; it’s quite another to live it. These resources, with more on the way, have been crafted to help you navigate the challenges of living with celiac disease, and we hope you’ll let us know how they work for you.
The Resource Library was made possible through the inspiration and support of The Moca Foundation. For 21 years, Beyond Celiac has relied solely on the generous financial support of our community. Contributions of all sizes drive our research initiatives, educational materials, and advocacy campaigns. Please join us in working toward a world where people with celiac disease can eat without fear. Add your support today!
Building upon two decades of progress driven by our community, we are thrilled to embark on our most ambitious endeavor yet— Beyond Celiac Investments (BCI), our venture philanthropy initiative. By engaging this investment strategy, we will dramatically accelerate the development of celiac disease treatments. Imagine a world where we do not need to educate schools and restaurants to keep ourselves and our children safe! BCI is propelling us toward this future faster than ever.
It is important to note that all our advancements, including BCI, are made possible through the support of our community. Generous donors and investors have already raised over $1 million of our initial $2 million BCI investment goal. Let’s connect if you would like to contribute to this transformative fund. We are excited to share the detailed proposal and strategies with all interested partners.
While we tirelessly pursue our goal of developing treatments and a cure, we remain committed to supporting a healthy, fulfilling present. Remember to visit the Resource Library for managing those challenging moments. And remember that every day, because of your support, Beyond Celiac strives toward a world with fewer challenges thanks to advancements in celiac disease treatment.
Have a wonderful, cool August! I look forward to all that we will accomplish together in the coming months!
Together for a cure,
—Alice Bast, CEO
The gluten-free diet can be scary, but have no fear, Beyond Celiac is here! We have our sights set on a cure for celiac disease, and every step you take helps get us closer to our goal.
Join us this fall for a self-paced, family-friendly in-person event in Philadelphia, Boston and Dallas, or our virtual 5K option.
Proceeds support our work to accelerate research for treatments and a cure. Help us Step Beyond Celiac by registering today!
Looking for the next best potluck dish? Look no further than our German potato salad! Can be served warm or cold depending on your preferences or the constraints of the summer cookout. Add extra bacon for the meat-lovers in your life.
Enjoy the fruits of summer with some fluffy and airy angel food cake! You can try making fresh whipped cream or icing for an extra hit of sweetness.
This recipe was provided by our friends at Gluten-Free Palate.
QUESTION: Patients who test negative for both celiac disease and a wheat allergy but who still feel better on a gluten-free diet are often diagnosed with what four-word condition? Hint: it can be abbreviated NCGS.
ANSWER: Patients who test negative for both celiac disease and a wheat allergy but who still feel better on a gluten-free diet are often diagnosed with non-celiac gluten sensitivity (NCGS). Colloquially, non-celiac gluten sensitivity is often called a gluten intolerance. Learn more about NCGS.
Join us in Philadelphia this fall for a day packed with presentations on groundbreaking celiac disease research and expert panels about the exciting advancements in the field!
Lunch is included in the ticket price, and all food offered is gluten-free. Space is limited, so we encourage you to register as soon as possible to reserve your spot at the event.
A new study that analyzed the activity of more than 10,000 genes found that a drug being investigated to treat celiac disease prevented intestinal damage caused by gluten.
Studies of both children and adults suggest that highly positive TTG-IgA test results might be enough for a celiac disease diagnosis.
Read more research news on our Research News Feed
This survey intends to provide greater clarity on the experiences that people with celiac disease have when exposed to gluten, including the top symptoms with a negative impact and how symptoms and gluten exposure negatively impact quality of life.
If you’re signed up for Go Beyond Celiac, we invite you to log in and complete this survey. If you haven’t already joined, please become a member of Go Beyond Celiac and start sharing your story today.
Learn more about Go Beyond Celiac
“I had ever-worsening osteoporosis, and oral meds did not help. I eventually took bone density injections every six months for two years, and had two bone density infusions at the hospital. In 2021, my DEXA scan was normal, they thought I was ‘cured,’ and then the next scan showed severe osteoporosis again. At that point, we knew there was something underlying going on. I was then diagnosed with celiac disease.
Being recently diagnosed, there is a mourning period you go through for the life you once had. I wasn’t diagnosed until I was 69 years old, which means that I got to live a lot of my life ‘normally.'”
Celiac Disease Linked to Eating Disorders, Even Anorexia
People with celiac disease often have an uncomfortable relationship with food, one that is often a lifelong battle. Before their celiac diagnosis, food made them sick. After their diagnosis, food still often makes them sick, and eating remains a high-maintenance affair. So it makes sense that, according to a Swedish study, celiac disease patients experience higher rates of anorexia nervosa (or AN) compared to control subjects.
Get Tickets to a Twins Game Supporting Beyond Celiac!
Join Beyond Celiac and the Minnesota Twins for a special Celiac Awareness Day at the ballpark on August 30! Buy tickets through the provided link and a portion of each purchase will go back to Beyond Celiac. Together, we can strike out celiac disease!
Raise Money for Beyond Celiac on Facebook!
Happy birth month to all our August-born community members! When your big day rolls around, consider raising money for Beyond Celiac so that we can help fund new research by scientists in the celiac disease field. And a HUGE thank you to everyone who’s created fundraisers for us throughout the years! These fundraisers help make our important work possible.
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